The quest to matter

It might be human nature to want to feel significant, to know we've made a difference by existing. I remember reading stories of pioneers who transversed the plains on their way to the Willamette Valley to steal land from the natives already living there. As they urged their plodding oxen forward, they left their marks on the land in the form of cast-off detritus, wagon wheel ruts, and carvings on Independence Rock, for example. I wonder if those travelers had any idea of their legacy. Now we treasure those acts of littering and vandalism. I think they just wanted to feel like, for a brief moment, they had made their mark, to prove they mattered.

A few weeks ago I camped in a dispersed camping area southwest of Tucson. The small area was crowded with campers, trailers, and motorhomes in various states of disrepair. Some looked like they hadn't moved in months. Huge tent mansions had sprung up around them as the residents sought to expand their living quarters into livable space. The wind whipped those tarps and tent flaps incessantly. 

I tucked my minivan into a space too tiny for anything else, with bushes screening me on three sides. Just behind my liftgate I saw the remains of a campfire ring, now filled with charcoal and some trash, which I put into my garbage bag. As I inspected the ground, I came across a plastic ziplock bag weighted down by a rock. I picked it up. A folded piece of paper was inside. Of course, I opened up the bag and unfolded the paper.

A previous camper had left a handwritten note. He wrote that he had camped in that spot in early March, a month or so before I arrived. He had camped a couple months at the campsite, on his way to something else, he wasn't sure what. During his stop there, he found an excellent Mexican food restaurant, and he met a girl he really liked, apparently another camper. He noted the uncertainty of his journey and reflected on how much he had learned about life and himself by living in his Jeep. A philosopher. He left the note unsigned. 

Reading the note made me think about how easy it is for an uprooted person to feel disconnected from an established community. I haven't felt inspired to leave litter in the form of a note to posterity. However, I too feel the need to matter. 

Imagine packing your important belongings into a Conestoga wagon, buying a team of oxen, and pointing them west. Even though the trail became well established, and there were numerous routes and supports put in place to help travelers cross the plains, it must have been fairly terrifying to turn away from civilization to head toward parts unknown. I'm guessing the frustration of staying stuck in the East caved under the desire for freedom, adventure, land, a new life. Seeds to plant, heads to bust, gold to pan, whatever the impetus, it was enough to motivate those intrepid souls to put it all in a wagon and hit the road. 

My extended road trip is not that romantic. I can't claim any grand motivation. I'm just waiting out the housing shortage. 

I thought about tossing the note in my trash bag. In the end, I put the note back in the ziplock baggy and weighted it down with the rock for someone else to find. I couldn't bring myself to erase the existence of that note. That camper mattered, to me, if to no one else. 

Home is a state of mind

A new freedom can lead to a new happiness. So they say. I was skeptical. The hardest part, I discovered, is launching from the familiar into the unknown. However, the fear of staying stuck finally outweighed my fear of change, and now here I am, free to start a new chapter. You could call it homelessness. You could call it an epic journey of a lifetime, a quest for my heart's desire. I don't care what you call it. It's not your journey. It's not your life.

Should I tell you about the challenges of living in a vehicle? No, you don't want to hear about the sordid realities of refilling water jugs and dumping plastic bags of poop. You just want to be reassured that I'm okay.

Don't worry. I'm okay. I'm actually more than okay. I'm starting to feel like myself again. Autonomous, independent, free to make my own foolish choices, unconstrained by the shackles of a temporary life that wasn't mine. Now I'm free to search for a new life, maybe a new place, I don't know. Time will tell.

When you don't have a lot of money, freedom requires a small footprint. My mission is to live within my means; hence, the car thing. For now, it's the only way to maintain a semblance of my preferred lifestyle without blowing through the last of my savings. You might be reassured to know I have everything I need (literally) at my fingertips. I can get almost anything just by reaching for it. That's one upside of living in a car. On the other hand, smells. 

Right now, I'm parked on BLM land north of Tucson. The rain that just soaked California is now soaking the desert. The sound of rain on my car roof is oddly soothing. I peer outside my windows through a veil of raindrops. Everything is so green out here. Spring in the desert is pretty amazing. I get why people come here. And I get why they leave along about mid-May. Words don't describe how hard it is to live here without air conditioning when the mercury soars past 95°F. Living in a trailer with metal awnings was hard enough, even with AC. Imagine how much harder it is to live in a car. 

Ah, but living in one's car means freedom to move on! As long as I have gas in the tank and the engine cranks and runs, I'm mobile. Like all nomads, when the season shifts, I will drive away to cooler climes. 

So far, all my moves have been about getting somewhere so I can finally start living. Now I live where I am. This lifestyle is about the journey, not the destination. I can't get lost living like this, because no matter where I am, I'm where I belong, in that moment. Maybe home isn't just one place. Maybe home isn't a place at all. Maybe home is a state of mind rather than a point on a map. 

Some things don't change

I was sifting through my hundreds of raw source drawings, created over many years of sitting in meetings trying not to argue, cry, laugh out loud, or fall asleep. I'm old, so I've been to many meetings. That means I have many drawings. Almost all of them were drawn on lined journal notebook paper, so the quality is terrible. I do my best to clean them up and downsize them so they don't take forever to download. As I was scrolling through the list, looking for today's selection, I came across this one and realized, hey, that's right. I've been homeless before.

Looking back from the ripeness of old age, it seems to me that being homeless when you are young is way cooler than it is when you are old, wrinkled, and slow. Being a young bohemian has that hipness factor, or it could. I never had it, I was always the pathetic person my friends felt obligated to help by lending a couch for a night or by buying me breakfast. I still have some of those friends. Amazing. 

Eventually I figured out a way to exist in the world and started paying my way, until old age, poverty, and the shortage of affordable housing caught up to me. Rather than burn through the last of my savings, I have opted, as you know, to downsize and go on an extended road trip until something changes. I'm open to whatever. Maybe the housing supply will catch up to demand (hey, it could happen). Maybe I'll win the lottery (unlikely, considering I don't play). Maybe I'll roll my car and it will all be over. 

Meanwhile, life goes on and I'm doing my best to live it with style and panache, but within my limited means. If you've read this blog (which nobody does, so I feel free to say what I want), then you know I've downsized into my minivan, which I fondly call The Beast. Well, no, I haven't named it yet. Van lifers often name their vehicles. I have a little philodendron in a clay pot, which I have named after my mother. But other than that, this vehicle is as yet nameless. 

I'm currently parked in a parking lot outside an outlet mall somewhere near Tucson. I opted to vacate my peaceful campsite in the desert because we are getting some rain and high winds, and I don't want to get trapped by a flash flood. I'm not worried that I will be washed away, but it will take a few days for the water to evaporate, and I do worry about getting stuck in the mud. So, hence, parking lot.

I won't stay here for the night. It's not a level lot, for one thing, so I would end up sleeping on the floor. The main reason, though, is that there is a carnival set up at the top of the lot behind me. Earlier in the day, it was quiet. I thought, great, how fun to have a ferris wheel to look at but no crowds. Surely they won't open in the rain. Well, don't call me Shirley, because at 4:00 pm, the fair opened. Families with little kids have been streaming past my car, heading toward the source of the pounding music. I have my window covers up on that side, but I peek out from time to time. It's pretty, if you like carnivals. To top it off, every five minutes or so, a freight train rolls through on a nearby railroad track.  

I'm going to cut this short so I can drive back to Walmart or to Cracker Barrel or Home Depot or someplace where I can blend in with all the other ubiquitous minivans, pickups, and SUVs. Judging by the quantity of reflectix in windshields, I think lots of people are living in their cars. 

I will not regret the future

To avoid living in the present, which is fraught with fear to the point of frantic dissociation, I am employing a technique known as visioning (which is basically a hallucination based on wishful thinking) to imagine a brave and hopeful future for myself after I've survived my personal version of freefall. My role model for this visioning process is Tom Hanks. No, I don't mean Forest Gump, although the temptation of saying eff it all and running across the midwestern plains has a certain appeal. No, the Tom Hanks character I am going to emulate is whatever the guy's name was in Castaway.

If you saw the movie, you remember he started out as a somewhat chunky normal guy. Then the plane crashed and he ended up castaway on a deserted island. He had to perform his own oral surgery. I don't plan to emulate that part. The memorable moment is what happens between the moment he conjures fire and the cut to the god-like creature he morphed into after a few years of surviving on fish and coconuts. 

I don't plan to start eating fish or coconuts. However, I do plan to morph into a god-like creature. God-dess. Whatever. Something other than what I am now. 

I can use my time on the road as an opportunity to reinvent myself. I can be someone different. Like, really different. You might not even recognize me in two years, that's how different I could be. Minus the plane crash (or in my case, I hope, the car crash that always seems imminent), I'm envisioning myself as the svelte survivor I will be if we fastforward a couple years. 

I will be thin. I will be smarter, somehow (not sure how that would happen, but I can hope). I will be able to get up from a chair without grimacing or grunting. My nose hairs will magically recede (but not back to my legs). I will be able to eat what normal people eat without getting sick, fat, or poor. Lactose intolerance will cease to be my nemesis. My cataracts will fade, my heart will settle into a steady rhythm, my bones will firm up, and this freight train in my head will roar off into the sunset, taking the typewriter tinnitus with it, never to be seen or heard again. I might even start to wear something other than black pajamas. Hey, as long as we're dreaming.

I don't expect all this to happen without my participation. First, of course, I will join a gym, because that is what people who want to reinvent themselves do. I might even go once in a while. Next, I will become a master of butane stove cuisine. I expect to be limited somewhat by lack of refrigeration, but if the planets align properly, I'll be able to get another power station to run my tiny portable camping fridge, currently languishing in my storage unit. There's nothing like powdered eggs cooked on a skillet in the frigid morning air. Nothing like it. I'm not sure what I will do about the hair migration problem. Even goddesses are allowed to shave their upper lips once in a while, right? I'm pretty sure. 

The only hitch in my vision might be the three caped and hooded horseriders of my personal apocalypse: my health, my teeth, and my car. These three dudes siphoned a lot of money out of my bank account the past couple years. Copays and a colonoscopy, crowns and root canals, and new tires and front end work all ganged up to just about kill me. I don't expect these nasty dudes to back off entirely, but maybe if I figure out what sacrifices to perform to placate their supervisor, I might make it through another year without running out of cash. I can hope. I am totally future tripping these days, because that is where hope is. The past is out of reach. The present is far too uncertain and painful. So what else is there? I'm running forward, not looking back.

Surreality on the fourteenth floor

What was I saying last week about suffering being optional? Oh, brother. I stand corrected. Suffering is mandatory. It's the human condition. If it's not an atmospheric firehose, it's a check engine light. If it's not prunes for breakfast because cheese has ripped you a new one, it's dementia welcoming you to hell. Check your expectations at the door, get in, fasten your seatbelt, and keep your head and arms inside the ride at all times, if you can.

I whined about cold dark nights in the desert, but you don't know cold and dark until you've seen your college friend and former business partner being eaten alive by the worst form of dementia labeled by modern medicine. How come we can get stains out of clothes with a spritz from a spray bottle but we can't clean out the crap that infiltrates our neurons and causes us to lose our personhood? It's unfair, wah wah, but then again, what's unfair for the human is a triumphant heyday for the virus or bacteria or whatever the hell it is eating up my friend's brain in great big noisy gulps. 

Last week was one of the most surreal experiences I can remember. My friend's husband paid for me to stay in a guest room at the memory care facility. In some ways the guest room resembled a posh hotel room: a bathroom bigger than my studio apartment, with a huge shower; a fully functional kitchenette with a two-burner stove, dishes, and a full-size refrigerator for my full-size pizza; a queen size bed in front of a king-size flat screen TV; and a sitting room with a loveseat and a round wooden table with two chairs. The only things I lacked were a hook for my bathrobe and functional WiFi. Did I mention it was on the fourteenth floor? It was on the fourteenth floor. The floor-to-ceiling windows looked out over Westwood Village, and in the far distance, yes, I had a view of the Pacific Ocean, glittering in the sun. 

After each visit with my friend, I retreated to this sanctuary to cry, to moan, to berate God for turning my friend into someone I didn't know, and to beg God for mercy, that if this disease should infiltrate my brain that I be given the grace to accept it and the means to locate some fentanyl, stat. 

I've been back in Tucson for two days, and I'm still gobsmacked by the horror of what happens when we lose our capacity to think. 

There were some macabre moments of levity. She managed to tie her shoelaces to each other. Fortunately I fixed it before she stood up. On her birthday, she put a red plaid flannel shirt on inside out, so the chest pockets hung like flacid bags. It looked great on her rail-thin figure—I predict we'll all be wearing our flannel shirts inside out soon. My teariest chuckles came when her old-fashioned red bat phone rang and she answered the TV remote. The TV came on, and the phone kept ringing. 

Another time she tried to answer a flat long paintbox set. In her defense, it did resemble a really big cell phone. The phone kept ringing, so I picked up the telephone receiver and held it out to her. She started mumbling into it. I tried to take the paintbox out of her other hand, but she pulled it away and stood there with a "phone" at each ear, muttering word salad. My brilliant funny friend.

My friend is still in there somewhere—I can see it in the art she makes—but her personality has shattered. She knows something is very wrong, and she's frustrated and scared. She has a minder every morning until her husband comes to do the afternoon-evening shift. She often locks the minder out of her room, paranoid to the point of tears, complaining nobody there likes her. Almost every morning, she packs a bag, determined to escape the prison. In fact, she got out a couple times. The airtag in her purse led to her rescue. She keeps trying. The first day I was there, she'd packed all her shoes into a big yellow bag, along with a couple mismatched socks, two cashmere scarves, and a toothbrush. Whatever it takes. 

Maybe it's some weird kind of blessing that the slow-motion car crash my friend is experiencing is taking so long. The pace of the disease gives us time to accept it, to say goodbye slowly, to grieve in smaller doses that aren't as painful or shocking as they would be if she'd died in an actual car crash. If I had cancer, I would want time to say goodbye. The problem is, her body lives on while her brain is dying. She could live on for several more years before her brain forgets how to tell her throat to swallow. Is it better to be aware or unaware that you are disintegrating? 

This week I got the news that another friend, an older man I served on a nonprofit board with, has decided to have his doctor remove the medical device that keeps his heart going. He's chosen the day and time. Day after tomorrow, 10:00 a.m. ET. He's said his goodbyes. A few hours after they unplug him, he will die. He's running to meet death. How badass is that? The medical system is geared to help us survive at all costs. We compassionately euthanize our pets but we pull out all the stops to keep the hopelessly ill people alive a few months longer, even if they aren't considered "terminally" ill. It's so uncivilized to usher our decrepits off the mortal coil "before their time." 

It's all just random, a slurry of genes, lifestyle, income, and social connections that determine our lifespan. Unless we opt out. Ha. Take that, fate, God, or whatever the hell you are.

As the week went on, stopped trying to understand. I learned to respond to my demented friend with compassion and encouragement, even though I had no idea most of the time what she was saying. I looked for the nuggets of joy. She lit up at the sight of her birthday cake, and for a few moments, I caught a glimpse of the person I used to know. 

I was grateful she knew me. I hated to leave, and yet I could not leave fast enough. On the morning I checked out, I kissed her cheek, told her I could not take her with me (she had packed all her socks), and got someone to let me out the lockdown door into the elevator lobby. I took my broken, raging heart down to the parking structure, got into my musty car, and drove out of that tomb into the California sunshine. Will I see my friend again? Maybe in another year she won't know me. 

That's a problem for another day. 

Today, I live.

Suffering is optional, and your misery can be refunded

The Chronic Malcontent here, coming to you from open desert somewhere between Parker, AZ, and Lake Havasu City. I’m parked on a swath of BLM land that looks a lot like a Marscape. Just over the rocky hill to the west is the famous Lake Havasu, invisible to me because I don’t own lakefront property, a boat, or a willingness to pay for a sardine spot in a campground along the water. I’m cool with it. Seen one lake, yada yada.

Last night I found a spot on BLM land along highway 62 about six miles outside of Parker, just over the California border. More Marscape. I was going to stay two nights, but my power station was running low. Solar generation was out of the question, given the rain pelting the region, so the only way to charge the thing up was to drive. Hence, new location.

I was in a store in Parker and got to talking with a gentleman from Michigan. I could tell he was from colder climes because of his sporty cargo shorts and sockless sandals. It’s not cold here (even by most standards), but by Arizona winter standards, the temperature is just a little below normal. I feel it. My blood is Arizona thin after several seasons. I bundle up, as usual, with hat and fingerless gloves.I’m on my way to Los Angeles tomorrow to see my demented friend. I am not looking forward to being back in L.A. I was just there last April. I seem to remember swearing I would never return. Kind of ironic, given I lived there for twenty years. I suppose the city has changed a lot, although it’s still sprawling and chaotic; more to the point, I have changed. Driving in cities is hard and unpleasant. I have come to appreciate the long vistas and time to think that come with driving on the open road.

The American West has a lot of open space, which is why vehicular nomads tend to gravitate toward this part of the country. In the winter, most flock to southern Arizona to enjoy mild weather. Case in point, the dude from Michigan. He comes down here every winter with his wife and stays in various places. I got the feeling he meant nice hotels and golf resorts, because they weren’t driving a motorhome, just a little van conversion with a bed in the back for her to sack out during trips. Reminds me of my parents. They did something similar, poor-man style. Mom slept while Dad drove. I’m guessing this is in large part how their marriage survived so many years.

What have I learned on my roadtrip so far? Nights are long and dark. Mornings are cold. I need more lights. I need less stuff. The challenges are the basic conundrums of finding new routines in a new environment. Tip: everything needs to have a place, and when you are done with a thing, put it back in its place, otherwise you will not find it for days.

My brain keeps slipping gears as it tries to parse this new reality. I’m searching for meaning where there is none. I’m here, that’s all. It doesn’t have to mean I’m a colossal loser, a moral failure. People who haven’t lived a nomadic lifestyle get judgy, as if being on a continuous roadtrip is a sign of mental instability. I admit, I get mired in self-recrimination at times. This isn’t what I expected, that’s for sure, but to see it as a failure rather than an adventure is just a rut borne out of my upbringing, family concerns, and societal opinions.

I don’t believe I create my reality. Everything is outside my control. However, I do believe I can choose how I want to perceive reality, and in that sense, my choices create my experience. It’s challenging to avoid the drag of outside opinions. Everyone thinks they know what is right, for me, for them, for the world. Good, bad, who is qualified to judge my perception of my reality except me?

Meanwhile, the work of writing continues. What else is there? I’ve decided to rebrand myself as Carol B, Roadwriter. Creativity lives on, as long as there is life and breath.

Wandering but not quite lost

I’m writing to you from Bureau of Land Management (BLM) desert land outside of Quartzsite, Arizona. BLM land out here occupies many square miles. You can drive forever on dirt roads, although the further you go, the more you need four-wheel drive. My city minivan would not survive most of those roads. Being a sedate older person not looking to drive off a cliff, I keep to the flats not far out of town.

I am parked about a half mile from the freeway, near a shallow wash and a copse of scrubby trees, about one hundred yards from a herd of half-million dollar Prevosts towing toy haulers. Earlier they were racing their toys around the desert landscape. Now the happy campers seem to be setting off fireworks. I don’t know why people bring their entire house with them to go camping. On the other hand, nights in the desert are dark, cold, and endless. I suppose it helps to have heat, cold beer, and a big screen TV.

Yes, it’s a bit chilly in my car at night, but I’m not complaining. I hear Portland is 16°F, with snow, freezing rain, and high winds. Other parts of the country are suffering extreme winter weather as well. If that is your situation, I’m sorry. Especially if you are living in your car.

Speaking of living in a car, I am not living in my car. Yet. I’m on my second official roadtrip, on my way to Los Angeles by way of Quartzsite, AZ. I have found my tribe here in Quartzsite, but in true apanthropist fashion, I don’t want to have anything to do with them. I got my name badge at the RTR, saw the interiors of Sprinters, cargo vans, and minivans designed by some proud nomads, and listened to a woman in a long gauzy skirt make noise, oh excuse me, soothing healing sounds, by pounding on some large bronze shields with a fluffy mallet. I left as soon as I could.

I did not grown up in a camping family, so camping is a mystery to me. My mother camped with her parents and brother. Then she married a non-camping enthusiast and had four kids. It’s not that my father lacked an adventuresome spirit. He had a boat for a while, a 24-foot Thompson with a throbbing stern drive. He took me out on the Columbia River Slough once. We broke down. A nice lady in a little motorboat towed us back to the dock. Then on the next outing, he hit a half-submerged log and busted the sterndrive. Soon after, he sold the boat. He never talked about it, but I am guessing he was sad the dream ended the way it did.

I never wanted a boat. Neither have I had a hankering to camp. I like to hike, but not if I have to dodge snakes or climb over boulders. I was born and raised a city kid, which is why being out here in the open desert freaks me out. The quality of darkness outside my covered windows is more than I can bear to think about. When the wind scoots under the car, I feel a momentary change in my heart rate. Every little rustle could be a packrat eating my wires. A couple nights ago a storm blew through and carried my tarp and welcome mat into my neighbor’s campground. Anita from Missouri. She parked way too close to me, so I befriended her in self-defense. Widow, two kids, long-time camping enthusiast. I vacated to a more peaceful location the next day, which is where I am now.

I can see why people buy bigger and bigger vehicles. This minivan is a very small space, crammed with way too much stuff. If I were inclined to claustrophobia, I would never be able to do this. However, I’m fine with MRI machines and small minivans. I will probably wake up in my coffin and go ho hum. Not really. I hope to donate my body to science and avoid the entire coffin thing.

I feel somewhat like a pioneer might have felt. Did I bring enough food? Can my oxen pull this wagon? Will my solar panel charge up my Jackery or will clouds get in the way? Where can I dump my trash when the transfer station is only open three days a week? Will I have enough cell signal to get phone service, and how close am I to running out of my monthly quota of data? You know. Pioneer problems.

Why do some people glorify this lifestyle? It’s homelessness. You should have seen the interiors of some of those rigs. They looked like garbage dumps, festooned with fake ivy garlands, carpeted with Persian rugs and fake vinyl plank flooring, and reeking of incense, cooked onions, and poop.

After seeing all that stuff, I am more determined than ever to continue my commitment to downsize. I sense I am headed off a cliff of minimalism. It’s been a gradual slope at first, but the incline is getting steeper as I am coming to accept that I cannot maintain a life full of stuff. I feel a mild panic attack lurking just out of reach. Time to pee in my bucket, turn on my heating pad, and hit the foam rubber. Happy trails.

I feel a road trip coming on

The end of a year inspires me to look past the daily grind of living to the broader panorama of my life. Maybe you could say I'm looking under the hood to see if my engine needs an overhaul. It's barely eight o'clock in the evening here in Tucson, and already I hear fireworks in the distance. Sometimes people like to set off rockets in the wash behind the trailer. If we're really lucky somebody will set something on fire (preferably not this trailer), and the sirens will inspire a coyote chorus. Nothing says you live in the stupid cold desert like hearing a bunch of howling coyotes. 

The drawing you see here is from 1997, when I was in freefall between Los Angeles and Portland. I was trying to look on the bright side. What did I know about being homeless? Clearly nothing, judging by the insipid enthusiasm on my face (yes, that is a self-portrait, and yes, I used to have hair in those days). I was just as prone to magical thinking then as I am now, but my yearnings these days are tempered by cynicism borne of aging. It's hard to conjure much enthusiasm for adventure (or fireworks) when one is worn out from the trials of being alive. 

Oh, woe is me, I'm alive. What a tragedy. 

Being alive beats the alternative, but it's hard sometimes. The air pressure ebbs and flows, which means my vestibular system is swamped at least once per minute. The noise in my right ear is deafening. My neck aches from valiantly trying to hold my head straight, to keep my sightlines steady. When my eyes are closed, I lean to the right, so I try not to close my eyes when I am standing up. Walking in the dark is difficult. Dangerous, probably, but when you gotta go, you gotta go. I don't think this vestibular paroxysmia malady is getting worse, but it's not getting any better. I am waiting impatiently for my visit to the neurologist in February. Maybe she'll have some answers about this downed powerline in my head. It's just as possible she will tell me to quit whining and send me home. 

Home. I still hope such a place exists. I plan to continue my quest. I could give up, surrender to Tucson, admit defeat, tell myself it doesn't matter if I live in a place that doesn't feel right to me. I could just suck it up, along with my physical maladies. But with the housing situation the way it is, I can't afford even the roach-ridden gun-infested sleazebag apartment I rented the first year I came here. My options have dwindled, and I don't think it's my fault. Rents have gone up all over the nation, and low-income seniors are being hit hard. I feel it. It hurts.

I was forty years old when I left Los Angeles to move back to Portland. I had parents then. I had a long-distance relationship that quickly fizzled and morphed into another quasi-committed relationship. In other words, I had multiple safety nets, the lowest and most moldy of which would have been my parents' basement. I never really worried about being homeless. It was kind of a cool bohemian dream, to be a vagabond. The nomad vanlife wasn't a thing yet (because YouTube hadn't been invented yet), although people did travel and live in motorhomes. I remember thinking it would be cool to live in a living room on wheels. I had a vision of selling paintings of mountains and waterfalls from the back window of my peddler's art wagon. My partner at the time was equally enamored of the possibilities of the nomad lifestyle, probably because he hoped to fly under his ex-wife's radar, maybe avoid paying taxes, skip out on child support, that sort of thing. Me, I just wanted freedom. 

Speaking of freedom, I'm headed out to Quartzsite in a week to hang out with the vanlifers, nomads, RVers, and schoolies. It will be crowded. I will not be alone. I will not be lonely. I will find kindred spirits. Or I will enjoy my solitude—just one small minivan among many travelers—cook food on my butane stove, and catch up on my sleep. I'm not sure what the internet situation will be. I don't really care. 

After that desert rendezvous ends, I'm planning on visiting my demented friend in Los Angeles. She's in a place now for nutty seniors. I complain a lot about my cognitive abilities (and I'm sure I'm dropping typos in my blogposts like my mother used to drop used tissues from every pocket), but I can still think and make decisions. Not great ones, sometimes, but I have autonomy. My poor friend has lost her ability to think, just like my mother did over the last few years of her life. But my friend is not even seventy. My heart is broken. 

Well, whose isn't, these days? If you haven't had some heartbreak in the past year, lucky you. I hope 2024 is better for all of us, no matter what kind of year we had. For those of us who struggle, I offer the familiar maxim, so 1970s but still true: not all who wander are lost. 

The five fingers of death take a holiday

I have an aversion to eating anything with a face. If a creature would run from me if it could, then I do not want to make it a meal. Even if I were lost in the wilderness, I would have a hard time eating grubs (not in the desert, however, because there are no grubs in the desert, just lizards and scorpions). Maybe I would get hungry enough to gum a lizard. Maybe not. I have a hazy assumption that I would somehow manage to pick, peel, and suck on a prickly pear. Right. Have you seen those things up close? All the flora in Southern Arizona is trying to kill me. It’s like its members spot a person with disequilibrium from afar, like a tick waiting for the unsuspecting hiker to pass by, and then they lean toward me with their feathery stickery arms and quivering bony spikes, hoping to impale me as I struggle to keep my balance.

You can tell I’m feeling persecuted by the desert.

This week when I was on my second road trip to Northern Arizona, I found the perfect place to take a fall and die. Have you been to Montezuma Well? It’s a natural springs that has bubbled up in a rock basin for thousands of years. The native inhabitants of the area used to live near the Well in cliffside dwellings they built from rocks. Even today, local tribes think of the Well as a sacred place. I can see why. It really feels magical, this unexpected oasis in the arid desert.

I was the first one at the gate, that's how eager I was. Being a tourist is fun sometimes. I sat and waited, and then more magic, but of the technological wireless variety. On the dot at 8:00 am, I heard a loud beeping, and the two metal gates swung open just for me.   

Ignorant whites named it after Montezuma, mistaking it for part of the Aztec civilization. On the upside, however, the park service built a meandering staircase of 112 steps so that visitors could descend close to the water. You can’t touch it, and I’m not sure you’d want to anyway, given the pondscum on the surface and the leeches that lurk in the depths. Still, it's water in the desert, and that is always a welcome sight. If you are feeling robust, and if it is still early in the day before the heat bakes you into a husk, it’s a descent worth taking.

So I took it.

Going down wasn’t hard, you know, because of gravity, but there are no handrails, which is when I had the thought that I could fall here, just pitch right off the edge, and maybe that would not be so bad. My soul, if I have such a thing, would no doubt enjoy the dip in sacred waters, in spite of the leeches.

I didn’t fall. 

Coming back up the 112 steps, though, was a workout. I could hear the voices of the two park rangers, who were standing at an overlook at the rim a good fifty yards above me. I could see them from time to time as I paused on landings to catch my breath and wait for my heart to slow. The larger heavier ranger was teaching the younger skinnier ranger about the history of the Well. Their voices echoed in the basin. I wondered if they knew CPR. Most likely, probably it's a job requirement, not that CPR is something I would want, given what I now know, that CPR is not a thing most people survive, nor would they want to, if they knew what I know now.

Better to let me slip under the green and blue water and let the leeches suck my soul while the ducks nibble on my toes.

I didn’t fall. I didn’t have a heart attack and die. I made it to the top. After a good long moment to rest, I took a trail down to the place in the side of the hill where the outflow (the swallet) emerged through a narrow channel made by long-dead indigenous peoples. That water was used to irrigate the “three sisters”—corn, beans, and squash. This practice endured for generations, until the tribes decided to uproot themselves and move south to join some villages that I guess seemed like more fun than farming the desert.

The day before I visited the Well, I saw the other part of the park system known as Montezuma Castle, which is the cliff dwelling clinging to the side of a high cliff about eleven miles away from the Well. That was an impressive construction feat, but as a visitor, I was disappointed, not by its construction, which is amazing, but because park visitors are not allowed to go up and walk around that dark castle, I guess for obvious reasons, but still. It would have been cool. Literally, it would probably have been much cooler up there in those carved caves—at ground level, it was easily 100°F at 4:30 when I was visiting just before closing time.

Montezuma Well was more satisfying in the sense that I could imagine I was walking in the footsteps of people who used to live and work there, finding physical and spiritual sustenance on the land because of that sacred water.

To celebrate my vacation, I did two food-related things. I ate ice cream. And I ate an English muffin. I know, I know. Some of you are saying, Carol, jeez, lighten up, no wonder you are so uptight, you need to eat more ice cream. And some of you are saying, oh no, you ate two of the five fingers of death! It’s curtains for you. The five fingers of death, if you don’t remember, are the invention of the erstwhile Dr. Tony, naturopathic bully: wheat, corn, soy, sugar, and dairy.

I try to minimize my intake of these foods. I hate to give Dr. Tony any credit for saving my life, but among the many wacky things he said and did, telling me to eat good food and drink water probably deserves a thanks. It doesn't mean I don't indulge in sugar in my oatmeal and soymilk in my tea, but I always feel a twinge of guilt, like, oh, no, what is the arrogant bully going to say this time as he sucks the money from my bank account? He has since retired to the godforsaken hinterlands of Oregon, also know as Bend, where I assume he is tormenting other willing victims who haven't yet caught on to his subtle yet nefarious passive aggressive quackish homeopathic ways. Me, resentful? No, but thanks for asking.

I am curiously waiting to try cultivated meat, vat-grown chicken, what are we calling it? Chicken cells grown in a stainless steel container. The intriguing thing is, no chickens are harmed in the creation of this product, although I’m not sure I totally buy that. No chicken would voluntarily donate its cells for science, even it meant all future chickens could escape the butcher's cleaver. I mean, we like chickens for lots of reasons, right, but we give them too much credit if we imagine they understand the moral and philosophical implications of offering up cells as a ploy to save chicken lives. They default to chicken run every time if given free range.

I want some of that protein, is all I’m saying, and I don’t want any chicken lives to be harmed in my attempt to get enough protein to stay alive, without resorting to eating bugs, grubs, and lizards.

I probably won’t live to see packages of cultivated chicken in the grocery store. I doubt I’ll live long enough to own an electric car. I probably won’t live to see a glut of affordable senior housing spring up about the land, driving rental prices down to the reach of any sad sack who needs a place to live. Too bad for me. I could be sad at the prospect of missing out on future prosperity, or I could be resentful, both really appealing and viable options. I'd like to know what happens after I’m gone, but unless there's something mystical that occurs after we die, probably once I'm gone, I'm gone, and none of this will matter, nobody will care. In a way, it's nice to know that life will go on, I just won’t be part of it anymore.

The epic road trip continues

The epic road trip continues. Lucky me, no car camping for me this week. I spent every night indoors, hosted by friends and family. This morning, I headed north toward Oregon, ready for some solitude, which I have found at a lovely rest stop overlooking a green valley outside of Ashland, Oregon. Brisk wind buffets my car. I’m in the back, sitting crisscross applesauce, window covers in place, with a USB light that will go dead soon. I must type quickly.

Monday and Tuesday I spent with old friends in the Sherman Oaks area. on Wednesday night I slept on the couch of a best friend in Silver Lake, and on Thursday, I found my way to La Canada Flintridge to stay with a high school chum. On Friday, I headed north to San Francisco to stay with another friend in an amazing vintage apartment near the Golden Gate Bridge. Saturday found me with family in a suburb of Sacramento, discovering the joys of having a great-niece and nephew.

My friends are all best in class. You couldn’t ask for more loving and gracious friends. Most of them I’ve known for at least thirty years. Fun fact: My fiftieth high school reunion is next year. I love all my friends. However, I’ve never seen all my friends in one week. I am overwhelmed.

It’s been a lot of driving, talking, driving, talking. By the time I got to Sacramento to see family I rarely see, I was content to listen to the kids chatter and eat the food their parents fed me, and then play a card game as if I were one of the family. Which I guess I was. They treated me like family, which is to say, they incorporated me into their world without fanfare. They had a cozy couch, and the dog didn’t bark once during the night.

I love them all. However, being the introvert that I am, my people alert got tripped on Monday and hasn’t stopped clanging since. For the first week of my epic road trip, I had six nights to myself, only one night in other people’s spaces. This week my dance card was full. It has been rough.

Why so hard, you ask? Thanks for asking. I ask myself that as well. It’s great to have shelter, right? I should be grateful. I am grateful! My friends are so generous. Still, do you find it hard to be a guest? I’d much rather be the host. But there I was, using other people’s soap and towels, enjoying their bathtubs (if they had one), and sleeping on various surfaces, from cushy memory foam to a well-loved couch fighting for space among a plethora of throw pillows. I’ve seen bathrooms in every condition, from a tiny cubicle with a sink and toilet to a posh rival to the Ritz Carlton. I’ve seen how many ways there are to make coffee, including not making it at all.

Disappointment: My vertigo problem has not resolved itself as I’d hoped it magically would. Elevation does seem to make it somewhat worse. I think maybe it’s the air pressure, combined with stress and fatigue. Possibly a pinch of insanity. Who knows. Anyway, my head is still reeling, and my ear is still crackling, but my ankles are no longer swollen, so there’s that.

Right now, even though my head is jammed into the headliner, and my toenails need trimming, and traffic is roaring by on I-5 about one hundred yards away, I’m feeling content. Truth: I’m really glad to be alone. I love you all, but now I must go away, so I can have the bittersweet joy of missing you.

PS: Sorry for typos and boring description. I'm beyond tired, and it's really hard to write a blogpost from the back of a minivan. My legs have gone to sleep. Be well, see you all next week.

Dreaming of hopefullies

I had a topic in mind for today's blogpost, and then I took a nap and had a dream that I lost my cellphone. I woke up in tears, blaming myself for my carelessness, and when I looked inside my brain, all remnants of my previous topic idea had vanished. I hate it when that happens. I know better than to shut my eyes without writing the thing down, but there it goes, off into the ether to find a writer who is less careless with her ideas. It was such a great idea, too, one of my best. Really pithy and poignant. You would have been impressed. To tears. 

Meanwhile, in other news, the planning for the epic car camping journey of a lifetime continues. I guess I'm ready to drive off the cliff. Or wherever the road takes me. Hopefully not off a cliff. There are a lot of hopefullies associated with this trip, I'm noticing. Hopefully it will have stopped raining (and snowing) by the time I drive through California. Hopefully floodwaters and landslides will have receded. Hopefully I won't be dumb enough to rely on Google Maps this time. On my last trip I almost ended up in Salt Lake City.

Let me tell you about that dream. I was at somebody's big fancy house. There were movie stars! And an indoor pool! Somebody said, Carol, why don't you go for a swim? I peeled off most of my clothes and laid them by the poolside. Then I got distracted by something else in the dream. Next thing you know, I go back, all my stuff is gone. Stupid! I berated myself into wakefulness, and woke with great relief at finding I hadn't actually been that stupid. My cellphone sat silent nearby. I don't think I would have been so trusting in real life. But you never know. Movie stars! Indoor pools!

I'm not starstruck. In my former days as a custom clothing designer, I had occasion to meet a few movie stars. A few people whose names you would probably recognize. With one minor exception of somebody who held my hand just a wee tiny bit too long, they were all polite and professional. 

Hopefully I will find safe places to sleep along the route. Hopefully there will be cell service in all places so I can text my sister before she calls the local sheriff to send a search posse. Hopefully my car holds out. A lot of hopefullies.

I feel like I'm going off to summer camp or something.

Is it normal to feel trepidation? Hm. I was going to write that I am not used to undertaking big adventures on my own, but then I realized, hey, how do I think I got to Tucson in the first place? Epic car adventure! Three days of driving through Oregon, Nevada, and Arizona on tiny roads both gorgeous and godforsaken (because I missed my turn and ended up almost in Salt Lake City). Getting lost is how you see cool things. Hopefully I can seek out cool things to look at intentionally and get to actually appreciate their coolness, instead of berating myself for not being able to read road signs in the dark. I mean, I need to cut myself some slack: good eyesight is nice but perhaps slightly overrated when there's no one else on the road.

Hopefully somewhere along the journey, my head will settle enough to hear myself think. Hopefully I'll find a place that feels like home. Hopefully I won't lay my cell phone down somewhere and drive off without it. 

Home. That was the topic that floated off into the ether. Something to do with home. Home. Ho um. Ho hum. 

You wouldn't believe how many people would be happy to take my money in exchange for telling me what losing my cellphone means. Apparently, I am feeling disconnected and out of touch. My communications with others are broken, at risk, not going through. Hm. A good day for me is when the phone doesn't ring. 

I remember days before cellphones, do you? Color TV, cordless phones! IBM PCs, Macintoshes, and floppy disks! I remember life before the internet. It's hard to imagine life without it now, although I get to experience the tiny but excruciating loss frequently. The blazing fast internet here at the trailer is a bit temperamental. It goes out once in a while, usually for about three minutes. During those three minutes, do I sweat? Am I anxious? Do I watch the little circle representing the entirety of my existence and pray for the moment the happy broadcast waves return? No, because I know I cannot petition for restored internet with prayer. Duh.

I wonder how I will feel when I'm parked at some rest area or truck stop or Walmart in podunk California, debating how much data my hotspot would chew through because I felt compelled to check for nonexistent email from friends and scour my inbox of all the political entreaties, Pinterest clickbait, and Duolingo reminders. I guess I'll find out (assuming I'm not parked in a dead zone). 

Speaking of dead zones, I sent away for a USB tuner stick that will hopefully let me get broadcast channels on my laptop while I'm on the road. I tried it here at the trailer, and it worked. Unfortunately, it didn't get me any more channels than the bigger antenna does on my Mom's television. I guess broadcast airwaves is a physical thing. There's no magical USB device that will magically attract all those shy waves that are blocked by mountains, buildings, and stupid metal trailer awnings. If I could petition the broadcast airwave gods, I'd ask for a giant roof antenna. Some days, you need more than just ABC, PBS, and Univision.

There are so many criteria for a new home. What criteria do you consider important? Proximity to good schools? Safety? Green spaces? I'd already considered proximity to Winco as a dealbreaker, but now I think I should consider airwave reception. You might say, well, Carol, there's this thing called cable . . . I hear you, but I'm ignoring you. Meanwhile, I have one more blogging Sunday before go-live, go-big-or-go-home, drive-off-the-cliff time. See you then.

Finding the thank-you-god ledges along the journey

My friend E told me about the Thank You God Ledge in Yosemite. I looked it up and saw photos. No thanks. It's a long narrow ledge almost 2,000 feet up the face of Half Dome. Just looking at the photos makes me want to cower in the closet. However, the concept of a ledge providentially placed when one needs a respite is useful for describing my double stint at Trailer Tesserae. That's one of the names for this mobile home I'm currently living in, in case you have forgotten. Art Trailer. Artmobile. Art Box. 

I've been in Arizona almost two years. April 24 will be the two-year anniversary. After a three day 1,500 mile help-me-god trip through the desert, I landed on the ledge of Trailer Tesserae. That was before it had that name. For three months, this mobile home was a safe spot from which to learn the neighborhood and find my next perch, which turned out to be the roach-infested Bat Cave. After a year in the Bat Cave, I landed back in the Trailer, to regroup, to reconsider, to plot my next move. The plotting is starting to take shape. Last week, I told you about the shakedown cruise I took with E, who showed me how to live in my car. Camp in my car, excuse me. Let me not get ahead of myself.

For my next help-me-god trip, scheduled for mid-April, I'm driving to California and then north to Oregon to meet my siblings at the end of the month. We plan to find a nice cozy beach somewhere near the confluence of the Columbia River and the Pacific Ocean where we can scatter Mom, who for two years has been peacefully resting in ash form in a cardboard box on my brother's shelf. Sorry if I've told you all this before. I'm sure your memory is much better than mine.

I have this vague idea that along the way, my next perch (home) will manifest, and I will no longer be destination-less. I can hope. I found the Love Shack in Portland by driving and looking. Most of the great apartments are never advertised. One must troll the desirable neighborhoods looking for red handwritten for-rent signs. Miracles do happen. After successfully using a mechanic-in-a-can product last week to remedy my check engine light, I am now a believer. I just have to figure out in what general area I want to live, go there, and look for vacancies. Easy. I feel a tiny bit giddy, like a kid in an ice cream store. Do I want the Rocky Road or the Chocolate Chips Ahoy?

It's possible I'm deluding myself. Housing costs in California are far beyond my meager means. It's not likely I will have many options. Still, I'm not the boss of outcomes. It might seem exceedingly unlikely I will find affordable housing (I only need one place), but it's not impossible. I'm holding onto hope.

Meanwhile I've discovered mal de debarquement syndrome (MDDS), which is easily the most fun diagnosis I have entertained for my inner ear disturbances, just for the name alone. You have to say it with a French accent, to really get the most enjoyment from it. I give myself a new diagnosis weekly, just for the hell of it, because why not? The ENT took the easy way out by slapping vestibular migraines on my chart before she offered to poke a hole in my eardrum. I'm not saying I don't have vestibular migraines, but I also have symptoms that align with other vestibular maladies, of which there are many. While I'm thinking of it, riddle me this: How come there are so many vestibular illnesses identified and named but not studied and treated? Do researchers get paid by the name? Where's their incentive to actual find the cures? Just asking for a friend.

Another fun diagnosis I entertained last week was called persistent oscillating vertigo. I mean, what's not to love? It's chronic, it's energetic, and it's mysterious. Just the word oscillating itself conjures images of egg beaters inside my inner ears, whipping up an ocotonia omelet. Before that I was into another interesting diagnosis, known as Triple P D. PPPD. Persistent postural perceptual dizziness. That's a mouthful. It's elegantly all-encompassing. I like theories that really pull everything together. PPPD is like the theory of relativity for vestibular malfunctions. So fun.

I still don't understand the mechanisms that make my right ear crackle when the waves of whatever the hell this is roll through my head. It feels mechanical, but I have a hunch my ENT, whom I will visit in early March, will tell me it truly is all in my head and I should start seeing a therapist. And taking a benzodiazapine of some kind. Not going to happen, but thanks for the suggestion, Doc.

Guess what I've been doing in my spare moments? Since yesterday, I've been staring at a video of vertical black strips rolling slowly from right to left across a white computer screen. The instructions are simple. Make the image big, get close to the screen, stare into it, and slowly bend my head from right to left and back to center, six times per minute for five minutes. Do this eight times a day for five days, and relief is all but guaranteed. I feel as if I'm in an old episode of the Avengers and any minute now, Mrs. Peel and Mr. Steed will be swooping in through the skylight to rescue me from the Hypnosis Crime Syndicate, who seek to control humanity by altering our brain waves while we think we are watching reruns of Welcome Back, Kotter. 

When I say relief is guaranteed, that assumes I actually have MDDS, which is far from certain. I don't care. To cure myself with moving vertical stripes is free, painless, and kind of cool. I find my eyes crossing, like they do when you stare into one of those 3-D Magic Eye pictures trying to find the chipmunk in all the multicolored dots. Just when you think, man, this is totally bogus, there it is, the squirrel suddenly appears, so real you could almost pick him right off the page. After you let your eyes go back to normal, for the rest of the day you feel just the slightest bit high. 

These vertical stripes are sort of like that. Eventually my eyes cross and I can see into infinity below the edge of my screen. When I move my head to follow the instructions, the lines seem to slow and stop briefly before starting again, even though I know they maintain a steady pace for the entire video. This is evidence of how my brain is messing with my eyes, and vice versa. Throw in my inner ears, my Eustachian tube . . . and apparently my spinal column, too, and no wonder I'm on a wild ride. 

I'm so over it, but I guess it is not yet done with me. The adventure continues.

My aching back

You'd think I'd be used to change by now, after sixty-six years on the planet. Nope. Still not used to it. Still cranky when things change. Is it masochistic that I keep putting myself into situations that produce massive change? Maybe it's not masochistic. Maybe it's courageous. Did you ever think of that?

Speaking of cranky, I have a bone to pick with Microsoft. They had this nice little program called Picture Manager, really great for editing my drawings. Along with good old Paint, I can take my crummy illustrations drawn on lined journal paper and erase the blue lines, tidy them up, reduce the gray, and deepen the midtones. A few iterations ago, Microsoft stopped offering Picture Manager as part of Office. I have happily used Picture Manager for years on my old desktop but I don't have it on my laptop. 

Picture Manager came installed with MS Office 2010, which is what my desktop system was running, up until yesterday when the graphics card fizzled from dust, decay, cat hair, and old age. In fact, pretty much what has happened to me the past fifteen years just happened to my desktop computer system. Kaput. 

I'm grieving today for my desktop system. I'm also really grateful to the computer gods who kept the graphics card running long enough to finish a massive editing job with a serious deadline. I finished the job at 1:00 a.m. last night, went to bed, and woke up to a dead computer. Talk about miraculous timing. Bummer, my computer is dead, but hallelujah, it picked the right moment to die. Maybe there is a god.

I went to Dr. Google, who has all the explanations for everything, including the answer to the question What are these weird splotches on my arms and legs? and discovered that 2010 Sharepoint has Picture Manager, and I can download it for free. The kind people on the internet showed me what to do, and it worked, and now I have Picture Manager on my laptop. Yay. My laptop is to my desktop as the tortoise is to the hare, so it took quite a while to download (yes, yes, I agree, take my first born), install, customize just for Picture Manager, search for the folders with pictures in them, and then find the image I wanted to use. You can see I didn't get all the blue lines out, but I never do. Now that my desktop system is gunnysack, my printer/scanner will no longer work either. That means no more scanning of my drawings. Now I must use my smartphone to photograph my drawings. No more easy peasy. Everything creativity related now is slower, harder, and grimmer.

Change. You'd think after all this time.

Speaking of aching backs, car camping! When E called it a shakedown cruise, truer words never spilled over the epiglottis. My bed platform was sturdy but hard as only a plastic shelf with a one-inch camping pad and a pile of fleece blankets can be. That is to say, many long moments of wondering, what weird kind of frozen hell is this? Sleeping in a minivan in the middle of a freezing desert? I win the Amana Freezer for insane choices. I was saved by technology in the form of a dinky powerbank, my new boyfriend, Jackery, a 240 watt battery that powered my 70 watt heating pad that kept my feet warm during the night. I would not have made it without that heating pad. I would have been crying long before dawn. 

As it was, dawn was a long time coming. Do you know how dark and cold the desert gets when the sun goes down in the winter? Yeah, you probably do. You probably do your research before you go camping and wisely decide not to camp in the desert during the winter. Not me. I have to learn it all the long dark stupid cold hard way. Darkness comes fast and goes away reluctantly. Those three nights seemed to last forever, with a little bit of daylight in between. A watched sunrise never rises, isn't that how it goes? Something like that. You would make sure you have proper lighting in your car after dark, wouldn't you, you expert camper you. So you could do something productive, like, I don't know, blow on your freezing fingers or something.

I was shaken up good and proper on this shakedown cruise, and now I know I can survive in my car if I have to. I hope I don't have to live a long time in my car, but now I know I can do it. I can sleep (fitfully), cook, eat, bathe (sort of), poop in a bucket (an experience you should not miss for yourself), and stay warm (more or less, with my Jackery) in my car. And it requires much less paraphernalia than I thought. It was strange to wake up, fix coffee, and wonder, where the hell am I? And keep on drinking my coffee.

I understand the difference between low desert and high desert, but I guess I have to experience the difference in order to really get it, if you know what I mean. I whined last week about elevation. I kept trying to pay attention to my head during my road trip around Southern Arizona and into California. My head wasn't perfectly balanced in the low desert, but it went crazy when I got back to the high desert. That should tell me something. 

Okay, enough palaver. My head is reeling, my ear is crackling. That means we are expecting snow flurries tomorrow. 
 

Making it visible

 

Happy new year, Blogbots. I've had this drawing ready to go since 2016. How are you doing so far on your resolutions for the new year? Great, glad to hear it. Me neither. I don't see the point. I don't know if I will get out of bed tomorrow. 

My computer has been warning me all day of sleet and rain, starting and stopping. Sleet! It's chilly here in Tucson, but not that chilly. Now the widget is cautioning me about wind. Heavy rain moved in, taking my head down with it. The sound of rain on the metal awnings at the Trailer de Tesserae is alternately soothing and unsettling. Rain here is rare enough that when it happens, it comes as a shock.

I grew up in rain, probably was born while it was raining (3 a.m. on a mid-October morning in Portland, Oregon), so rain is not a stranger to me. For some reason, though, I missed out on the downy feathers and webbed feet. I got S.A.D. and a desire to head for drier climes. 

I did not factor in this stupid inner ear problem. When the clouds roll in and the air pressure drops, I know the washing machine in my head is going to go full-spin cycle. 

I'm tired of having an invisible disability. Nobody knows I'm suffering unless I complain. From the outside, I look pretty normal, not counting the occasional nystagmus and faltering gait. The noise in my ear is not audible to anyone else, including the ENT, which is why her suggested remedies were for me to stop drinking coffee and allow her to poke a hole in my eardrum. I said no to both suggestions. 

To get the sympathy I seek, I've been working on a facial expression I can use when the symptoms take over my head. This is so you will know I'm suffering. I'm dabbling with a gritted-teeth, squint-eyed sort of look. If I do it right, every 45 to 90 seconds, a look will come over my face. I'll hold it for 10 or 15 seconds and then relax when the ear crackling subsides. I guess I could just wear a sign around my neck. One side would say malfunction in progress, please stand by. The other side would say, talk now and make it snappy.

It probably won't work. Anyone who sees me with that expression will just assume I'm passing gas. That means to avoid social humiliation, I will still have to explain that the model freight train in my inner ear has just roared into the station. It's on a track. It just keeps going in circles, pulling in every 45 to 90 seconds, hissing for 10 to 15 seconds, and then pulling out again, whoo whoo, round and round and round. 

I've trained myself to ignore the hissing and rattling in my ear, mostly. However, it's like those parents you see sometimes in the grocery store checkout line, ignoring their child as the child yells repeatedly and increasingly loudly that they must have candy now. The parent can hold a long conversation with another person while tuning out their child's moans and pleas. The child knows there is a risk in keeping up the demands. Sooner or later, the tone of the child's voice will penetrate the carefully constructed dam protecting the parent's tenuous internal calm. When the dam is breached, all that pent-up fury comes boiling out. It's not a happy sight to see a parental meltdown in a public place. Those things are best left to the privacy of the home, which is how my mother handled it.

This malady is a slow-drip faucet from hell, wearing a hole in my skull. Every now and then, the carefully constructed barrier protecting me from awareness of this incessant ear rattling and pounding vertigo breaks down. That is when I'd like to shove a pencil in my ear while driving my car off a cliff. 

Speaking of driving my car off a cliff, road trip! Coming soon.

Happy holidays from the Hellish Hand-basket

Another year plods to a close. How do individual moments seem to drag when days, months, and years speed by so fast? The moments of 2022 blend together into a big blur of terror and boredom. 

I'd recap but memory fails.

My friend asked me if I was depressed. I said, I don't think so. After our call, I looked up the symptoms of depression. While I was at it, I looked up the symptoms of anxiety. You'll be relieved to know, I don't have either one. I might have signs of dementia, but it's too soon to know for sure. 

I'm pretty sure, though, that I am still grieving.

Just plain old garden variety grief, not so much for what I’ve lost, although that lingers, but more like grief for the idea of home that didn’t manifest for me since coming to Tucson. I sought a safe affordable home in the desert, and I got a temporary fix, which is grand, but long-term, Tucson did not turn out to be the answer for me, and that makes me sad.

As long as I'm grieving, I might as well add other losses to the list. I’m sad that suddenly I have to take so many meds. I’m sad that my heart is glitchy. I’m sad that my ears won’t settle. I’m sad I will end up joining the vast numbers of "car camping" nomads while I look for my new home. It's going to take a miracle. In other words, luck and persistence.

As long as I'm sad for myself, I might as well add my tears to the universal mix. I’m sad that so many people around the world are suffering. Near and far, life is hard and people suffer. Life has always been hard. People have always suffered. On a suffering scale, is it better or worse now, compared to decades past? I have no idea. How do you define and measure suffering? Can I say I suffer more than you suffer? To me, being cold is suffering. Hothouse flower.

Today is Christmas day. Two of my siblings got on the Zoom today with their respective significant others to do the obligatory monthly family Zoom, which just happened to fall on Christmas day. One sibling was absent. He has always blazed his own trail. Even as I send him texts (where are you? Family Zoom happening now!), I envy him his detachment. There's freedom in remaining unattached.

My family detached from Christmas years ago. When the parents were alive, we'd go out to eat. No cooking, no cleaning. Then we detached from the season by adopting a round-robin secret Santa gift-giving exchange among the immediate family members. Before long, we stopped giving gifts all together. Dad died, Mom became demented, I was broke, my younger brother was busy, and my older brother didn't care. 

Only my sister seems interested in carrying on any sort of family tradition or ritual. Channeling Mom, she sent me a toothbrush for Xmas 2021. This year I asked her not to. I can buy my own toothbrushes. But I think she was trying to hold family tradition together. As we get older, traditions have tattered. Memories have faded. We are widely scattered with no parent to glue the family dregs together. Interest and energy are circling the drain. 

Speaking of family rituals, next spring I'm planning to take a road trip to Oregon. If all goes according to plan, my sister will fly out from Boston. We will drive down to the coast and scatter Mom's ashes on the Columbia River at the same place we scattered my father's ashes, if we can find the place. It might have been washed away by time and tide since 2005 or whenever we did that ritual. Mom's been in a box for almost two years. It's time we set her free. Not that she would care—Elf on a Shelf, Mom in a Box—but I suppose my brother could use the shelf space.

It's possible that I will discover my next home somewhere on that road trip. Fingers crossed.