The quest to matter

It might be human nature to want to feel significant, to know we've made a difference by existing. I remember reading stories of pioneers who transversed the plains on their way to the Willamette Valley to steal land from the natives already living there. As they urged their plodding oxen forward, they left their marks on the land in the form of cast-off detritus, wagon wheel ruts, and carvings on Independence Rock, for example. I wonder if those travelers had any idea of their legacy. Now we treasure those acts of littering and vandalism. I think they just wanted to feel like, for a brief moment, they had made their mark, to prove they mattered.

A few weeks ago I camped in a dispersed camping area southwest of Tucson. The small area was crowded with campers, trailers, and motorhomes in various states of disrepair. Some looked like they hadn't moved in months. Huge tent mansions had sprung up around them as the residents sought to expand their living quarters into livable space. The wind whipped those tarps and tent flaps incessantly. 

I tucked my minivan into a space too tiny for anything else, with bushes screening me on three sides. Just behind my liftgate I saw the remains of a campfire ring, now filled with charcoal and some trash, which I put into my garbage bag. As I inspected the ground, I came across a plastic ziplock bag weighted down by a rock. I picked it up. A folded piece of paper was inside. Of course, I opened up the bag and unfolded the paper.

A previous camper had left a handwritten note. He wrote that he had camped in that spot in early March, a month or so before I arrived. He had camped a couple months at the campsite, on his way to something else, he wasn't sure what. During his stop there, he found an excellent Mexican food restaurant, and he met a girl he really liked, apparently another camper. He noted the uncertainty of his journey and reflected on how much he had learned about life and himself by living in his Jeep. A philosopher. He left the note unsigned. 

Reading the note made me think about how easy it is for an uprooted person to feel disconnected from an established community. I haven't felt inspired to leave litter in the form of a note to posterity. However, I too feel the need to matter. 

Imagine packing your important belongings into a Conestoga wagon, buying a team of oxen, and pointing them west. Even though the trail became well established, and there were numerous routes and supports put in place to help travelers cross the plains, it must have been fairly terrifying to turn away from civilization to head toward parts unknown. I'm guessing the frustration of staying stuck in the East caved under the desire for freedom, adventure, land, a new life. Seeds to plant, heads to bust, gold to pan, whatever the impetus, it was enough to motivate those intrepid souls to put it all in a wagon and hit the road. 

My extended road trip is not that romantic. I can't claim any grand motivation. I'm just waiting out the housing shortage. 

I thought about tossing the note in my trash bag. In the end, I put the note back in the ziplock baggy and weighted it down with the rock for someone else to find. I couldn't bring myself to erase the existence of that note. That camper mattered, to me, if to no one else. 

Searching for my tribe

My quest to escape the Tucson heat this week inspired me to relocate to higher elevation. I'd noticed on the weather forecasts that Sierra Vista was consistently four or five degrees cooler than Tucson. 87°F sounded better than 94°F. Thus, on Thursday after my second PT appointment, I headed south. An hour and a half drive brought me to this small city, where thanks to GPS I found the two most important things a city can offer: a library and a Walmart. 

I enjoyed the challenges of learning my way around Sierra Vista. The city has a lovely library, in case you get down this way. I did my laundry at a funky laundromat across from Fort Huachaca. I slept in the Walmart parking lot with quite a few other nomads. I shopped at Walmart a couple times to express my thanks. 

I don't know about you, but I can only stand so much Walmart energy before I have to leave, so after two nights, I checked the map and decided to try to find the BLM camping area that I'd heard about from a guy named Tater, who stopped by my van where I was parked last week next to the currently-on-hiatus Rillito Racetrack. 

I'd been doing some van chores and wondering what fresh hell my life would conjure this week. Tater (not his real name, I hope) drove up in a dented dirty white Chevy Astro panel van. 

"Hey, do you want solar on your roof?" he asked, rolling down his passenger window. 

Starved for human interaction, I trotted over and leaned in. "I like having it portable," I explained. "So sometimes I can park in the shade and still recharge."

He got out of his truck and came around to open his side door. "I do van builds," he said proudly, showing me the inside of his truck. I hummed and nodded to express my appreciation, but to myself I was thinking, dang, I thought I was a slob. All surfaces not covered with clothes, dishes, or other detritus were filmed with a layer of dust. I know that dust.

He lifted the side of his bed to show me his bucket and bag toilet.

"I have something very similar," I said. 

"I've been living in this for nine years."

"Wow," I said. "I just started. I'm a total newbie."

He opened up an app on his phone and showed me a map of the US with hundreds of dots on it. "I've camped at all these places."

"Wow. Have you camped up in the Marana area?" I asked. 

"No, so far I've only seen Snyder Hill," he said. 

I nodded knowingly. "Too crowded. Try Pump Station or Red Rock. Red Rock is gorgeous, if you don't mind being near a shooting range. It's going to be super hot this next week. I'm thinking of heading up in elevation but I'm not sure where to go."

"There are some places near Mt. Lemmon," Tater said.

I filed that for future reference. "I'm wondering about Sierra Vista."

"Yeah, some of the best camping down that way is Las Cienegas."

After leaving Sierra Vista, I headed southwest, looking for a particular road cutting north from the main highway. I disdained the GPS lady, sure I would find my way. The views are wide open! How hard could it be? True to form, I missed the turn and ended up in Sonoita, which is one of those places you'll miss completely if you blink. I parked in an empty lot and checked Maps, which told me to turn around and go back about nine minutes. 

I eventually found the entrance to an unpaved road, part dirt, part gravel, that dipped and swerved past a sign that said "This is a working cattle ranch! Leave gates as you found them." I drove over too many cattle guards to count, over hill and dale on the winding dirt road, and somehow managed to miss the camping area again. At least, I think that is what happened. The GPS lady was with me all the way, until she abandoned me in the middle of the road with nothing in sight but grassland, scrubby trees, and blue sky. I kept on driving, thinking any moment I would crest a hill and see my fellow nomads dispersed on the land before me. Nope. 

I took heart when a Sprinter van passed me from the opposite direction. Any minute now, I thought, and kept going. After dipping through some heart-stopping gullies (thinking wow, I'm glad rain is not in the forecast), I finally admitted defeat and consulted Maps again. Apparently I'd almost quit before the miracle. Maps showed me I was only four minutes away from a camping area called Cieneguita. 

And that is where I am blogging at you right now. 

The silence is wondrous. The view in all directions is a mind-boggling panorama of yellow grasslands, scrubby leafless trees, and roaming cows. And don't forget the canopy of blue sky.

Last night a visitor came through camp. I didn't hear a thing, but in the morning I saw the hoof prints and a fresh splat of cowpie, which the flies are enjoying in between trips through my open liftgate and out my open side door. 

This morning as I was practicing the vestibular exercises the PT gave me, standing heel-to-toe next to my car, trying to balance while alternately gazing up at the sky and then down at the dirt, I reflected on my camping experience to date. I'm learning two kinds of camping: city camping (wild camping) and free dispersed camping on BLM land. Both camping styles have their appeal. In the city, I feel connected to other humans, which feels mostly good, but the downside is I have to keep a low profile. No cooking on my campstove, for example. No leaving my windows uncovered at night. Out here on the land, my nearest neighbor is hundreds of yards away. Out here, I feel connected to nature, which I think is probably healthy for me in ways I don't yet fully realize. 

The Chronic Malcontent wobbles into nomad life

My younger brother used to be able to shoot down house flies with rubber bands. That takes some real skill. I don't have that skill. I resort to a spray bottle of alcohol. That used to work well on the house flies in Portland, even the great big ones. 

Here in the Southern Arizona desert, flies are hardy, tough little addicts. Alcohol just excites them. At least that is the way it looks to me. It's possible they are being replaced at the rate I shoot them down, like mercernary infantry who don't care if they live or die. It's possible the carpet is littered with carcasses, and I'll find them at some date long into the future when I do a deep clean on this little caravan. I hung a sheer curtain over the open doorway. It's folded over at the top, and multiple species of flies have congregated at the top of the fold. How they got in there I have no idea. What they are doing there is less of a mystery. I assume they skitter back and forth at the top of the fold because they are seeking the exit. Aren't we all.

Speaking of exit-seeking, I had my first appointment with the physical therapy suggested by the neurologist. We got off to a rocky start—I had failed to notice that one of the three pages I was supposed to fill out had more information on the back (in my defense, the other two pages were blank on the back, and I hadn't eaten anything since evening the day before, fearing she might be putting me through some shenanigans that would motivate me to barf.) Anyway, I think my OCD desire to finish filling out the form mollified her somewhat. She could tell I was a good student.

I was with her for almost two hours. I answered her questions as best I could. She did tests on my vestibular system (obviously not trusting the neurologist's diagnosis), and I'm glad she did her own tests, because as it turned out, she reached a different conclusion. Or rather, she reached no conclusion.

Finally we sat down in opposite chairs. She tapped my knee. "You don't have BPPV," she said. "Your eyes are steady. No nystagmus."

"Okay," I said.

"And I don't think you have vestibular migraines, either," she continued. "Vestibular migraines come like an attack, triggered by something, like food or bright lights. You don't have attacks."

"No, mine is more like waves," I agreed. "Every minute or so, with the ear crackling. Like a downed powerline in my head."

"In my eighteen years of therapy practice, I've never seen anyone like you."

"Oh," I said, feeling both special and bereft. 

"I can't treat you for BPPV," she said. "However, I have one more test I'd like to do, if you will come back one or two more times."

I nodded, picturing my calendar, which had two PT appointments per week for the next month. 

When I mentioned the schedule, she sighed. "The scheduler that day was new. Somewhat overzealous." Then she tapped my knee again. "I don't think you are crazy." 

"Uh . . . "

"You aren't making this up. This is a real thing."

"It is to me."

"Besides the vestibular paroxysmia, there's one other possibility. You might have Triple PD." 

Having read all the literature, real and fake, I knew that PPPD is a catch-all diagnosis that practitioners use when a patient has had a vestibular trauma and can't seem to shake it off. Over time, the patient develops anxiety, fearing the onset of the next attack, and the anxiety seems to keep the vestibular system constantly on edge, leading to chronic imbalance. 

"That is treated with antidepressants," I said. I was thinking to myself, I don't have anxiety, but some of the medications the neurologist mentioned were both antidepressants and epilepsy treatments. Maybe something could be negotiated.

"I agree with you, it makes sense to try the antiseizure drugs to see if they work on the paroxysmia. It's too bad this neurologist is new," she added (news to me). "It's so hard to get other doctors to read reports sometimes."

I'm guessing my future self is going to have to do battle with the neurologist, or maybe try to find a second neurologist who might be open to prescribing antiseizure meds. However, it helps to think the PT might be in my corner. We can hope.

Meanwhile, I'm out on BLM land in a place called Red Rock. The saguaros are incredible. The flies I've already described. The wind knocked over my solar panel, my little outdoor table, and a half-gallon of water, and now it's trying to pry off the blue tarp I bungeed to my car to block the blazing sun. From the inside, it looks like I'm inside an aquarium, except for the incessant flapping noise. I was hoping the wind would die down so I could leave the tarp up all night, but I don't think I can sleep with that going on, so wish me luck, I'm going out to battle the flies, the wind, and the tarp. 

See you next week.

Life comes at everyone

I can only remark that life is so strange so many times before it stops being strange and starts being the new normal. Everyone has challenges. On the continuum of challenges, mine are pretty shallow. Yes, I'm currently living in a very small space, but on the upside, I'm alive. Many people can no longer claim such a miracle. 

There's something great about writing this blogpost in my car listening to a transistor radio playing "ha, ha, ha, beautiful Sunday, my, my, my beautiful day." It's an insipid love song but it might as well be my theme song, at least for today. Oh, sorry. You're still stuck on the words "transistor radio." I know. Crazy. I remember I had one when I was a young teen. It ran on a 9- volt battery. This one runs on two AA batteries, but it's essentially the same thing: a little box that connects me to the outside world, which is especially welcome when I'm out on the BLM land. Unfortunately, the channel choices are slim out there. My options are country, hard rock, classical, hip hop, Spanish, and more country. Classical makes me insane, the hard rock is a little too head-bangy after a while, hip hop would be okay in small doses, and the Spanish channel is so exuberant I feel like taking a nap. So mostly I end up listening to country. I've never been a fan of country music. But it's better than doing van life chores in total silence with only the wind for company. What's more, none of the channels comes in clearly unless I'm holding the radio in my hand, which means I'm an antenna. It's hard to get things done with a radio in my hand all the time. 

That lovely rain I waxed poetic about last week trapped me in the desert for three days. I learned an important lesson: look at the dirt under my feet if I know the forecast calls for rain. The BLM land north of Tucson is not the gravel of Quartzsite. The roads to the camping area are soft red powder. You know what happens when it gets wet? Yes. Mud. No problem if you have 4-wheel drive, which I don't. So there I sat on my little rocky island, looking at the muddy ruts in the road fill with water and wondering how long I would be stuck. The trash bags were piling up, and some of them didn't smell so good, but I was mainly worried about running out of power. No sun means no solar charging. There are few things that make me crankier than running out of power. Imagine how you feel when the electricity goes out in your house. Yeah, like that, but with no utility company to call for the reassuring message telling you how many other households are affected and blaming some idiot for crashing into a power pole. 

On the third day, the sun came out. I charged up my power stations and started feeling better. By this time, though, I was a bit stir crazy. I tried to make a break for the main road and got partway there before I lost traction and had to park it on the rocky verge. I didn't want to risk getting mired in mud. So, there I sat, doing more van life chores, pondering the amazing amount of red mud on my tires, and waiting for the sun to dry up the land enough for me to escape.

I walked up to the main dirt road periodically, checking the condition of the ruts and grooves. Gradually the mush started to firm up. In the early afternoon, vehicles started flying by, mostly jeeps and big pickup trucks. When a small car went by, I knew I could probably get out if I could get from my parking spot to the road. With some careful maneuvering across ruts and between bushes, I eventually made it to the road. I fishtailed gingerly along the road until I came to civilization in the form of actual asphalt pavement. The land out there is beautiful, but roads are pretty nice, too. I was almost giddy to have real traction. The red mud fell off my tires as I roared down the road, singing "Here comes the sun" with the car radio (which has a big antenna, yay, oldies, finally!).

In my new adventure, I've had moments of delight. Stunning sunrises and sunsets. Spacious silence and wide-open vistas. Friendly Walmart parking lots and Walmart employees who show up at the exact moment I need help. The check engine light that comes on, and then goes off, as if to say, don't worry, be happy, it's all good, it's just one of those things. 

Life comes at everyone. It's coming at me, too. Or maybe I'm rushing to meet it. I can't really tell if I'm standing still or moving a million miles per hour through space. Maybe it doesn't matter. Maybe the trick is to learn to be present, no matter what is happening.

Enjoy the eclipse. 

Home is a state of mind

A new freedom can lead to a new happiness. So they say. I was skeptical. The hardest part, I discovered, is launching from the familiar into the unknown. However, the fear of staying stuck finally outweighed my fear of change, and now here I am, free to start a new chapter. You could call it homelessness. You could call it an epic journey of a lifetime, a quest for my heart's desire. I don't care what you call it. It's not your journey. It's not your life.

Should I tell you about the challenges of living in a vehicle? No, you don't want to hear about the sordid realities of refilling water jugs and dumping plastic bags of poop. You just want to be reassured that I'm okay.

Don't worry. I'm okay. I'm actually more than okay. I'm starting to feel like myself again. Autonomous, independent, free to make my own foolish choices, unconstrained by the shackles of a temporary life that wasn't mine. Now I'm free to search for a new life, maybe a new place, I don't know. Time will tell.

When you don't have a lot of money, freedom requires a small footprint. My mission is to live within my means; hence, the car thing. For now, it's the only way to maintain a semblance of my preferred lifestyle without blowing through the last of my savings. You might be reassured to know I have everything I need (literally) at my fingertips. I can get almost anything just by reaching for it. That's one upside of living in a car. On the other hand, smells. 

Right now, I'm parked on BLM land north of Tucson. The rain that just soaked California is now soaking the desert. The sound of rain on my car roof is oddly soothing. I peer outside my windows through a veil of raindrops. Everything is so green out here. Spring in the desert is pretty amazing. I get why people come here. And I get why they leave along about mid-May. Words don't describe how hard it is to live here without air conditioning when the mercury soars past 95°F. Living in a trailer with metal awnings was hard enough, even with AC. Imagine how much harder it is to live in a car. 

Ah, but living in one's car means freedom to move on! As long as I have gas in the tank and the engine cranks and runs, I'm mobile. Like all nomads, when the season shifts, I will drive away to cooler climes. 

So far, all my moves have been about getting somewhere so I can finally start living. Now I live where I am. This lifestyle is about the journey, not the destination. I can't get lost living like this, because no matter where I am, I'm where I belong, in that moment. Maybe home isn't just one place. Maybe home isn't a place at all. Maybe home is a state of mind rather than a point on a map. 

Some things don't change

I was sifting through my hundreds of raw source drawings, created over many years of sitting in meetings trying not to argue, cry, laugh out loud, or fall asleep. I'm old, so I've been to many meetings. That means I have many drawings. Almost all of them were drawn on lined journal notebook paper, so the quality is terrible. I do my best to clean them up and downsize them so they don't take forever to download. As I was scrolling through the list, looking for today's selection, I came across this one and realized, hey, that's right. I've been homeless before.

Looking back from the ripeness of old age, it seems to me that being homeless when you are young is way cooler than it is when you are old, wrinkled, and slow. Being a young bohemian has that hipness factor, or it could. I never had it, I was always the pathetic person my friends felt obligated to help by lending a couch for a night or by buying me breakfast. I still have some of those friends. Amazing. 

Eventually I figured out a way to exist in the world and started paying my way, until old age, poverty, and the shortage of affordable housing caught up to me. Rather than burn through the last of my savings, I have opted, as you know, to downsize and go on an extended road trip until something changes. I'm open to whatever. Maybe the housing supply will catch up to demand (hey, it could happen). Maybe I'll win the lottery (unlikely, considering I don't play). Maybe I'll roll my car and it will all be over. 

Meanwhile, life goes on and I'm doing my best to live it with style and panache, but within my limited means. If you've read this blog (which nobody does, so I feel free to say what I want), then you know I've downsized into my minivan, which I fondly call The Beast. Well, no, I haven't named it yet. Van lifers often name their vehicles. I have a little philodendron in a clay pot, which I have named after my mother. But other than that, this vehicle is as yet nameless. 

I'm currently parked in a parking lot outside an outlet mall somewhere near Tucson. I opted to vacate my peaceful campsite in the desert because we are getting some rain and high winds, and I don't want to get trapped by a flash flood. I'm not worried that I will be washed away, but it will take a few days for the water to evaporate, and I do worry about getting stuck in the mud. So, hence, parking lot.

I won't stay here for the night. It's not a level lot, for one thing, so I would end up sleeping on the floor. The main reason, though, is that there is a carnival set up at the top of the lot behind me. Earlier in the day, it was quiet. I thought, great, how fun to have a ferris wheel to look at but no crowds. Surely they won't open in the rain. Well, don't call me Shirley, because at 4:00 pm, the fair opened. Families with little kids have been streaming past my car, heading toward the source of the pounding music. I have my window covers up on that side, but I peek out from time to time. It's pretty, if you like carnivals. To top it off, every five minutes or so, a freight train rolls through on a nearby railroad track.  

I'm going to cut this short so I can drive back to Walmart or to Cracker Barrel or Home Depot or someplace where I can blend in with all the other ubiquitous minivans, pickups, and SUVs. Judging by the quantity of reflectix in windshields, I think lots of people are living in their cars. 

The deadly season is approaching

After an interminable week of debilitating pain, it seems my clenched jaw has finally relaxed. What a relief. There's a thing called TMJ, who knew. Like TMI, but a lot more painful. My cheekbones are dented from my desperate attempts to grind my fingers into the pressure points (I learned that on Dr. YouTube). Pressing on the jaw hinge was a bad idea, I discovered. However, kneading my cheekbones as if my face was made of bread dough really helped relieve the tension. A twice-daily ibuprofen also helped. I'm happy to say, last night was my first night sleeping without a pill. 

In other news, last night was also my first night sleeping on my new camping mattress. I think I described my trip to the Phoenix foam store, how I asked for the firmest foam they had. Well, I got firm, all right. Maybe too firm. It's just one level softer than concrete, far as I can tell. On the upside, the 4-inch slab is good for sitting. On the downside, as a sleeping mattress, it is unforgiving to my arthritic hip. Today I caved and bought a foam topper at Walmart. I may be a stoic but I'm not a masochist. 

Speaking of masochists, I continue my headlong hurdle toward the edge of my personal housing cliff. In anticipation of my impending free fall, my friends and family are sending me Wikipedia links to Arizona towns they think might suit me. I dutifully check them out. Safford, Globe, Payson, Coolidge, Eloy. Lot of cool names. Like any place, each town has pros and cons. Too small, too hot, too cold, too near fire danger, too near a federal prison . . . But lots of interesting history, if you like mining. 

The thing about parking yourself in one place is you are stuck there. I don't know how you live, maybe you go out all the time, but me, I'm prone to hunkering in my burrow, immersed in my isolation. Being alone is my happy place. However, if the burrow I have rented is too hot, too cold, too noisy, too expensive, or otherwise not suitable, then picking up and moving to another burrow is not easy. I know this from experience.

Not so when your burrow is your car.

My generous friends in Scottsdale, the ones with the little dog, apparently feel bad that I might be living in my car for a while. This summer they have trips planned to exotic places. Would I like to take care of the small furry creature while they are gone? Of course, I said yes. I love that little dog, and the house has all the mod cons (plus, the pool got fixed). Lots of reasons to say yes. 

However, when I'm living in someone else's space, I am not inhabiting my own. You might think, oh, vacation, how nice. That is not how I see it. I see myself as neither guest nor employee, but some third thing. Friend, maybe, but a friend who is willing to leave half her life in her car in order to be at the beck and call of a dog and so my friends can enjoy their trips knowing the dog will be well loved. How they can leave their dog for so long is beyond my comprehension, but that's just me. I miss my cat daily.

Another drawback to saying yes to dogsitting is the season. Summer in Phoenix is brutal. In fact, summer is life threatening. It is not possible to live in a car during the summer in Phoenix. Activities are constrained to early morning. The rest of the time, except for brief excursions to the back yard to make sure the dog pees, I have to stay indoors. I tell myself, I will get a lot of writing done. I will get a lot of dog love (and we all know that will be good for a person with early stage heart failure). But I will be stuck in Phoenix at a time when anyone with the means to leave does.

Where would I be if I weren't in Scottsdale? Camping in the national forest outside of Flagstaff with all the other van life nomads, finding sunny places to set out my solar panels and listening to the wind riffle the tall pines.

Dog love or tall shady trees? 

Stoics don't cry

Last week I left you with a cliffhanger—would I survive the dental debacle or would I run screaming like a crybaby into oncoming traffic? Were you worried? I wasn't. But I should have been. I arrived to the emergency dental appointment on Tuesday, sure I was going to get a round of antibiotics and be feeling better in no time. That is not what happened.

The dentist took off the temporary crown and peered into the abyss. "I'm going to put some cold stuff on that back tooth and you tell me if it hurts," he said. 

He sprayed something on a q-tip and poked the tooth.

"Yow!" I said, just about levitating out of the chair.

"It's not infected," he said. "And you don't need a root canal. If the nerves were dead, you wouldn't feel a thing. Let's try putting some desensitizing liquid on it and put the temporary back on. See what happens. Sound good? Okay. Maybe we can numb it up a little bit," he said. 

What do you mean, a little bit? I didn't find the uncertainty in his voice reassuring. I laid there with some misgivings as he prepared the giant silver needle ray gun. He came at me from below, thinking he could fool me, but this was not my first rodeo in a dental chair. However, I welcomed the pinch and pull and stabbing pain with my trademark stoicism because I was pretty sure sweet oblivion would soon be happening.

"I'm going to go check on my other patient," the dentist said, stripping off his gloves. I sat in the chair and stared out the window at the cloudy sky, hoping to soon be able to rest my tense shoulders and relax my furrowed brow. I patted my face a few times. Was it getting numb? Not fast enough for me. 

All too soon, the dentist returned.

"It's not numb," I said.

"I think the desensitizing agent will help," he said. "But it is going to be very cold at first. And I have to paint all four nerves."

Four nerves! I was definitely on my last one. However, I dutifully winched open my mouth. He dipped a giant q-tip in something and painted my tooth. Instantly, pain shot down through my jaw into my spine, shattering my vertebrae as it went. I whimpered a tiny bit until the pain receded. 

"Hang on," he said and painted another part of the tooth. 

I groaned. I'd never experienced pain like this in my life. Worse than being socked in the jaw by my older brother. Worse than falling nose first onto concrete (also courtesy of my older brother). I realize now how fortunate I have been to have escaped serious pain until age 67. My luck had just run out. 

He painted another part of the tooth. I gripped my own hand and dug in. I would have drawn blood if I'd had any fingernails. The pain was excruciating. I could not help moaning. One of my moans turned into a despairing chuckle.

"People don't usually laugh when I do this," he said. Then he painted another side of the tooth. At that point, I wasn't sure if I was going to pass out, choke on my own spit, or have a heart attack. Any of those would have been fine with me if they would just lead to a cessation of pain.

"Almost done," he said and came at me again. The word torture crossed my mind several times. 

Finally, the tooth painting was over. He slapped the temporary back on and let his assistant deal with my trauma while he went to take care of his next patient. My woes had put a serious dent in their schedule. I successfully resisted the urge to apologize. 

I staggered out the door. The taste in my mouth, the smell in my head, the pounding in my jaw . . . I wasn't sure if I was going to make it to my car. I gagged a couple times, and prepared myself to hurl into the dirt beyond the curb. Gradually, the pain settled to a one-mule kick in the jaw instead of a twenty-mule team kick. I got into my car and thought maybe, just maybe, I might make it. 

Within five minutes, I was feeling great. Well, great in comparison to what I'd just experienced. Being relatively pain free compared to enduring the most horrendous pain I'd ever felt in my life is the most amazing kind of freedom. Going through such exquisite gut-wrenching pain and emerging victorious made me feel like I could do just about anything.

Which is a good thing, because on Friday, I was back in the hot seat for the permanent crowns. I was apprehensive but the prospect of finally having two crowns and a lovely bridge in between was a siren call lulling me into believing everything would be okay. Call it vanity if you must. I just really wanted a tooth back in that gap. 

"Do you want novocaine?" the assistant asked me. 

I felt my body clench from jaw to pelvis. "Do you think I should?"

"It shouldn't hurt much," she said. "Most people don't need it."

I grimaced, not wanting her to think me a wimp. "Okay, let's try it." 

It took over an hour for the dentist to grind the new appliance into shape so I could bite without breaking my jaw. In and out, in and out, pressing hard, youch, bite now, bite and chew, bite, bite, bite, okay. Check the little paper. Grinding, polishing, grind some more, bite bite bite. 

"This a strange form of sculpture, isn't it?" I mused during one short grinding break. It occurred to me, I probably would have made a good cosmetic dentist, back in my younger days when my eyes and hands were cooperating. 

"You have a deep overbite," he said. 

"You make it sound like that's a bad thing," I said. 

"If you don't mind . . . " he said and proceeded to grind some of the enamel off the upper teeth on that side. Whatever, I thought. It's on the inside, nobody will see. 

After an hour and a half, we agreed the bite was satisfactory. 

"The cement will be cold," he warned. He loaded up the glue and jammed the new bridge home. 

"Yow!" I grunted incoherently as he held the thing in place and zapped it with a blue light to cure the glue. Irradiated and in misery, all I could do was lie there and hope I would not choke on my own saliva. Breathe, I told myself, just breathe.

This back and forth had taken longer than expected. He was running way late. Once again I resisted the urge to apologize. Finally he unclipped my bib. As I wobbled to my feet, he told me I needed to get a special kind of floss to clean under the bridge so I wouldn't get tooth decay there, causing the whole thing to fail. 

And then he was gone to the room next door. I heard him welcome his patient with a jovial tone, as if he hadn't just spent a tedious hour installing an edifice over the chasm in my jaw. I thought, maybe he just really likes his job. Later I found out he was starting a week's vacation the next day. 

Since then, pain comes and goes. It moves around. The brutalized tooth seems quiescent. However, my jaw hinge throbs sometimes, and the nerves that he shot with his nasty silver needle ray gun sometimes quiver with rage. My neck has knots like the bumps on an alligator. I wonder if I will ever be the same.

Good news: ibuprofen. Other good news: lousy memory. By the time the next dental crisis rolls around, I will probably have forgotten how it felt to experience the worst pain of my life.  Someday soon, I predict I will be chomping apples on that fake tooth without a care. Even if I reread this blog, I won't remember the depth of my misery. It will all blend into one traumatic experience that I survived. The silver lining in the ongoing old age slow-motion catastrophe that is me.   

Going with the punches

Here we are again. I'm here for my weekly therapeutic blog dump. Stand back, all four of you blogbots, so you don't get spattered. Urp. Hm. Tastes like chicken. The theme of this week is teeth. Like, mainly, how annoying it is that they don't heal themselves. My car's check engine light actually has a better chance of self-healing (as long as I give it decent gasoline) than my teeth do. How come bones can heal but teeth can't, riddle me this. 

Three years ago, you might recall, a root canal went gunnysack, and I had to have the tooth extracted. It was less than a month before my move to Tucson. Implants were booked out weeks. So I moved house, proceeded to figure out life in the desert, and gradually got used to having a gap in my jawline. 

After so long of chewing on empty air, I thought, it's past time to get a bridge over the yawning chasm. It would be nice to chew food there again, if possible. Besides, the two teeth on either side were cracked and in need of crowns anyway, and insurance was paying for half, so I figured now was the time. 

On Monday I coughed and moaned like the stoic trooper I am while the dentist and his assistant did their best to choke me with my own spit. After two hours of grinding, I came away with a white blob of something that resembles silly putty covering the two brutalized teeth and the gap in between. It hurt for a day and then stopped hurting, and I thought, yay. Then it started hurting again, and now it feels like a squabble of angry worms are drilling tunnels through my jaw. It took a trip to the storage unit, but thank god, I found my acetaminophen and ibuprofen, yay, so the worms are sedated to a sluggish writhing. 

My friend noticed I seemed a bit under the weather on a recent Zoom call. Her partner is a retired medical professional, which means he has lots of knowledge and even more opinions. I appreciate both. He suggested I call the emergency after-hours number. I stared at the phone for a while, feeling reluctant to admit I might need some help. Finally, I called the office number, got the office recording, and wrote down the emergency number. After the beep, I left a whiny message. I don't feel so good. Then I sat around moping for a bit, wondering if this amount of pain constitutes a "true dental emergency," which is the requirement before you call the after-hours desperation hotline. However, I knew my friend would be checking on me, and I sure didn't want to be scolded by the medical professional partner for being too stoic, so I called the emergency number. I got a recorded message from my actual dentist himself. I was kind of relieved. I imagined he was out enjoying a lovely meal with this wife or maybe resting up for another week of jamming his hands into slobbery mouths. I would have been flustered if he had answered the phone in person. Sorry to bother. 

So far, no call back. 

Part of me is like, well, this is how it goes for me. Life comes at me swinging, and I either cave or pretend to cave and then pop up like a bobo doll, smirking I know you are but what am I. Right now I feel kind of crappy so I don't have the energy to bounce back to my feet. I'm more like a beached humpback whale, rolling with the flow and hoping the tide and a few valiant surfers will shove me back out to sea. 

I will feel better eventually, I am predicting, and then I can get back to the all-important task of jumping off a cliff. Eyes on the prize, people. 

I will not regret the future

To avoid living in the present, which is fraught with fear to the point of frantic dissociation, I am employing a technique known as visioning (which is basically a hallucination based on wishful thinking) to imagine a brave and hopeful future for myself after I've survived my personal version of freefall. My role model for this visioning process is Tom Hanks. No, I don't mean Forest Gump, although the temptation of saying eff it all and running across the midwestern plains has a certain appeal. No, the Tom Hanks character I am going to emulate is whatever the guy's name was in Castaway.

If you saw the movie, you remember he started out as a somewhat chunky normal guy. Then the plane crashed and he ended up castaway on a deserted island. He had to perform his own oral surgery. I don't plan to emulate that part. The memorable moment is what happens between the moment he conjures fire and the cut to the god-like creature he morphed into after a few years of surviving on fish and coconuts. 

I don't plan to start eating fish or coconuts. However, I do plan to morph into a god-like creature. God-dess. Whatever. Something other than what I am now. 

I can use my time on the road as an opportunity to reinvent myself. I can be someone different. Like, really different. You might not even recognize me in two years, that's how different I could be. Minus the plane crash (or in my case, I hope, the car crash that always seems imminent), I'm envisioning myself as the svelte survivor I will be if we fastforward a couple years. 

I will be thin. I will be smarter, somehow (not sure how that would happen, but I can hope). I will be able to get up from a chair without grimacing or grunting. My nose hairs will magically recede (but not back to my legs). I will be able to eat what normal people eat without getting sick, fat, or poor. Lactose intolerance will cease to be my nemesis. My cataracts will fade, my heart will settle into a steady rhythm, my bones will firm up, and this freight train in my head will roar off into the sunset, taking the typewriter tinnitus with it, never to be seen or heard again. I might even start to wear something other than black pajamas. Hey, as long as we're dreaming.

I don't expect all this to happen without my participation. First, of course, I will join a gym, because that is what people who want to reinvent themselves do. I might even go once in a while. Next, I will become a master of butane stove cuisine. I expect to be limited somewhat by lack of refrigeration, but if the planets align properly, I'll be able to get another power station to run my tiny portable camping fridge, currently languishing in my storage unit. There's nothing like powdered eggs cooked on a skillet in the frigid morning air. Nothing like it. I'm not sure what I will do about the hair migration problem. Even goddesses are allowed to shave their upper lips once in a while, right? I'm pretty sure. 

The only hitch in my vision might be the three caped and hooded horseriders of my personal apocalypse: my health, my teeth, and my car. These three dudes siphoned a lot of money out of my bank account the past couple years. Copays and a colonoscopy, crowns and root canals, and new tires and front end work all ganged up to just about kill me. I don't expect these nasty dudes to back off entirely, but maybe if I figure out what sacrifices to perform to placate their supervisor, I might make it through another year without running out of cash. I can hope. I am totally future tripping these days, because that is where hope is. The past is out of reach. The present is far too uncertain and painful. So what else is there? I'm running forward, not looking back.

At the end of the world, might as well be nice

In spite of the general and specific terrors of living with other humans, for some reason, I have been enjoying my interactions with people. I think it has something to do with the what-the-heck feeling I've been having at the prospect of my life imploding. I can afford to be magnimous. After all it might be my last chance to live my mantra, which last time I checked was to be loving and kind to others. Opportunities to practice abound.

Last week I bought a slab of foam rubber for my car camping bed. It took about an hour on three freeways to find the foam rubber place way out on the west side of Phoenix. Blogbots, we aren't in Scottsdale anymore! I always feel more at home when there is a pawn shop on every corner. My poor white trash roots showing, probably. Anyway, I pulled into the wayback parking lot of a big square concrete building and went in the tiny door next to the big garage door. It was clear by the looks on the faces of the workers that they didn't see many customers like me. Nevertheless the young woman behind the glass pane spoke enough English to understand my request for the firmest foam they had. She showed me a foot-square sample of 4 inch foam, almost hard as a rock. 

"That's the stuff," I said. 

She figured out the price for the size that will fit my bed platform. I was thrilled. It was a fraction of what I would have spent ordering online. Plus, I got to see the inside of a foam factory while I waited for them to cut my little piece of foam. I stood at the edge of the waiting area (no customers allowed past this line) and perused the big open space with the same delight I might have eyeballed a lovely waterfall or the cliff dwellings of Montezuma Castle.

Foam was stacked to the ceiling in places. A couple of really young women in tight jeans wrapped huge sofa cushions in plastic and stacked them in a pile near the loading door. Two men were running slabs of foam through a giant metal contraption. One of those slabs probably turned into my mattress, but it was too far across the factory for me to see. 

After about ten minutes, a short Latino man approached carrying what was obviously my specially cut mattress. 

"You want wrap plastic?" he said. I could tell he was hoping I would say no, and I did. No plastic for me, I like my slab of foam commando. I thanked him, grinning like an idiot. He probably thought I was mental. I took my new mattress out into the sunshine and loaded into the back of my car on top of the scrap wood I have to return to my storage unit this week. The van configuration is almost complete. 

So now I have two foam mattresses, one firm and dense, the other twenty year old mush that never was particularly firm, even when it was the new cushion for my home-built couch at the Love Shack in Portland. It's lost its mojo, after twenty years, if it ever had any. I'm sitting on it right now, actually. It's not an ideal typing situation, according to my arthritic hip, but it's not terrible to sleep on, even though I've violated it with my bread knife a few times, carving it in stages into something that could travel with me to Tucson. 

More interactions. Today I was at the store picking up a prescription for one of the drugs that makes it possible for my heart to refrain from murdering me. I smiled at the pharmacist and got a mildly pleasant response. I let shoppers with their carts go ahead of me and got smiles in return. I smiled at the cashier at the self-service register and she gave me a wide, gap-toothed grin and told me to have a nice day. 

I got in my car, ignoring the check engine light (my nemesis reappeared yesterday on my drive from Phoenix to Tucson). As I was maneuvering toward the exit, I saw a little car with a flat tire. An elderly woman was at the wheel. I pulled around and rolled my window down. 

"I have a flat tire!" she said.

"I see that!" I said. "Do you have someone coming to help you?" I tried to imagine me parking my car and attempting to help her change a flat tire. Right. I've changed, what, like one flat tire in my life? That was not recently, as you can imagine. 

"I'm calling Triple A," she nodded, letting me off the hook. "I have a car full of frozen food!"

"Oh, no!" I commiserated, adding some appropriate hand gestures to express my sorrow at her plight. 

We smiled at each other. I wished her luck. I pulled my car around in a circle and headed out of the parking lot, feeling like I'd connected with another human, even though I was completely useless as a potential solution to her problem. I offered her empathy rather than actual help, but sometimes just knowing someone cares enough to check and express compassion can be enough to help us show up with courage. She was in no danger. I just hope Triple A didn't keep her waiting too long.

What if I approached all my interactions with a caring heart? Good Samaritans don't always survive their altruism, sadly. But what is the point of living if we are always circling the wagons to keep ourselves safe? Total safety is an illusion. 

Not quite brain dead

The neurologist was everything I'd expected but not quite what I had hoped for. I knew I was setting myself up for disappointment. How could I not? I've been waiting since October for this appointment. It's no big surprise I built up some expectations during these long months of wondering if this person would (a) diagnose my vestibular malady accurately, (b) have a remedy, and (c) give it to me without lollygagging. 

I showed up with my stack of paperwork, hoping I'd followed all the directions properly: no food for at least four hours prior to the appointment, no coffee, no opioids. Ha. I paid my copays, stomach growling, and waited until I was called. 

Before I was allowed into the neurologist's inner sanctum, I had to endure an hour of vestibular tests similar to the ones I had at the October ENT visits but more violent. A perky young woman with long flat blonde hair briskly outfitted me with heavy goggles that were supposed to measure my eye movements. I sat on the edge of the exam table and held on as she grabbed my head in both hands and proceeded to jerk my head up and down, side to side, hard and fast. 

The purpose of this uncomfortable test (which cost me $100 because insurance doesn't cover it) was to see how much my eyes jiggled around as she upset the crystals in my ear canals. After a while, I felt like my neck was snapping, but I didn't come close to barfing. They keep trying, but I've been living on a boat (in my head) for years. I don't get seasick anymore. Plus, my stomach was empty. 

After a long tedious session, she freed me from the goggles. As I tried to regain eyelid function, she looked at the computer monitor showing a close-up of my half-open eyes, caught in a moment of misery, and said, "I saw a few small anomalies."

I waited for her to elaborate. She did not. She sent me back to wait in the hall for the main event, my session with the neurologist. At last I was ushered into a messy office dominated by a big wooden L-shaped desk. I sat in one of the two visitor chairs. She asked me to describe my experience, and when I did, she interrupted every few words with staccato questions. "What does that mean? When did that start? Can you be more precise?"

I tried my best. At one point, I felt myself choking up. Finally, someone was listening to me! I mean, someone who wasn't one of my long-suffering friends. I said, "I told myself I would not cry."

She said, "Go ahead and cry. People often do. Do you have a recent audiology test?"

"You have all my records," I said. "They were scanned a few weeks ago."

She glanced at the stack of paper on her desk. "I never look at them."

I opened the envelope of originals I had brought with me, thinking I bought a cheap Walmart printer just to print out all these records for you, can I kill you now? Lucky for her, my hands were busy searching through the stack of paper. It took a while, possibly because I was having caffeine withdrawals, but I finally located the two hearing tests and handed them over. 

"I'll have my assistant make copies of these," she said. "Follow me."

She had me walk up and down a narrow hallway in various postures: one foot in front of the other, like I was being tested for a DUI. Same thing, eyes closed. Stand on one foot, then the other, then again, with eyes closed. Sometimes I fell to the right, sometimes to the left. Each time, I caught myself against the wall, feeling like a clumsy idiot and wondering if I was passing or failing. 

"Let's go into the exam room."

I followed her tall chunky figure, grudgingly admiring her colorful swirly dress. I don't remember her footwear but I am sure she wore flats. She moved way too quickly and quietly to be wearing heels. Her movements indicated she'd seen a long procession of patients before me. Like, years and years of patients, all no doubt weeping and barfing as they fumbled through her tests. Not a motion was wasted. 

She sat me on the exam table. Then, oh no. More goggles! More head grabbing and jerking and shaking, plus lots of other tests involving eye tracking. And some of the basics. Moving fast, she tested my reflexes, looked in my ears, and listened to my heart. I saw her do a double-take. "Do you know you have an irregular heartbeat?"

I explained what I could about my wimpy case of aortic stenosis.

"I'm going to call your cardiologist. Okay? Now for the hyperventilation test," she said. "Breathe in and out of your mouth, fast, for forty seconds." My neck was starting to wilt with the weight of the goggles, but I held onto the table and gamely started panting like an old dog on a hot day. Pretty soon I was feeling lighter than air, but I kept at it, thinking if I pass out, let's see if she will catch me before I crack my head on the edge of the table. If I survive, I might get rich. "Don't worry, I'm watching the clock," she said at one point. I didn't believe her. My throat started feeling raw. I coughed but kept panting. A memory surfaced of hyperventilating with friends. How old was I? Old enough to know better. 

Finally, she stopped me, took off the goggles, and pointed to the computer monitor. "Your eyes are steady as a rock. You don't have vestibular paroxysmia."

"Really."

"I think you have BPPV in a hard-to-treat ear canal, which is why the Epley never worked well for you. And I think you have vestibular migraines. I want you to get some bloodwork. We have a lab here, if that is convenient."

I could hardly feel my feet as I staggered to the wing that held the lab. My brain was sizzling. I put my name on the sign-up list outside the door, and then saw the sign: out to lunch, back at 1:30. I looked at my phone. Barely past 12:30. Argh. I stood there debating. All I wanted was coffee and food, but who wants to go through all that fasting again? I decided to wait. It was only an hour. Surely I'd reached my misery quota for the day. I found a chair in the mostly empty waiting room outside the lab and the pain management clinic, spread out my stuff, and proceeded to feel sorry for myself.

Eventually the phlebotemist returned. She poked me in a vein and drew many vials of blood. I lost count after eight. I was feeling pretty crappy at that point. Now I get why they have those adult-sized high chairs with the padded bar across the front. Just as I was thinking, bye bye, she yanked out the needle, gave me some water, and sent me on my way.

So there you have it. Apparently the tests do not lie, even when the diagnoses don't match my list of symptoms (although some studies have suggested about 60% of the hyperventilation tests are wrong). Of course, it is possible I have more than one illness. I'm willing to consider the BPPV diagnosis. I think the vestibular migraine diagnosis is misguided. I still think I have a case of vestibular paroxysmia. My symptoms fit, and the MRA shows that it is possible. 

Meanwhile, I have a referral to a vestibular physical therapist and yet another migraine diet handout. 

I'm going to try, I'm really going to try. I'll go to the PT. I'll let them twirl and bend me. I'll do the eye exercises. I'll eat twigs but no more nuts. No raisins, no citrus, no onions, no tomatoes. And in a few months, if I don't feel better, I will go back and beg for one of the drugs I saw on her list of medications, several of which were antiseizure medications often prescribed for vestibular paroxysmia. We'll see who wins in the end.

Surreality on the fourteenth floor

What was I saying last week about suffering being optional? Oh, brother. I stand corrected. Suffering is mandatory. It's the human condition. If it's not an atmospheric firehose, it's a check engine light. If it's not prunes for breakfast because cheese has ripped you a new one, it's dementia welcoming you to hell. Check your expectations at the door, get in, fasten your seatbelt, and keep your head and arms inside the ride at all times, if you can.

I whined about cold dark nights in the desert, but you don't know cold and dark until you've seen your college friend and former business partner being eaten alive by the worst form of dementia labeled by modern medicine. How come we can get stains out of clothes with a spritz from a spray bottle but we can't clean out the crap that infiltrates our neurons and causes us to lose our personhood? It's unfair, wah wah, but then again, what's unfair for the human is a triumphant heyday for the virus or bacteria or whatever the hell it is eating up my friend's brain in great big noisy gulps. 

Last week was one of the most surreal experiences I can remember. My friend's husband paid for me to stay in a guest room at the memory care facility. In some ways the guest room resembled a posh hotel room: a bathroom bigger than my studio apartment, with a huge shower; a fully functional kitchenette with a two-burner stove, dishes, and a full-size refrigerator for my full-size pizza; a queen size bed in front of a king-size flat screen TV; and a sitting room with a loveseat and a round wooden table with two chairs. The only things I lacked were a hook for my bathrobe and functional WiFi. Did I mention it was on the fourteenth floor? It was on the fourteenth floor. The floor-to-ceiling windows looked out over Westwood Village, and in the far distance, yes, I had a view of the Pacific Ocean, glittering in the sun. 

After each visit with my friend, I retreated to this sanctuary to cry, to moan, to berate God for turning my friend into someone I didn't know, and to beg God for mercy, that if this disease should infiltrate my brain that I be given the grace to accept it and the means to locate some fentanyl, stat. 

I've been back in Tucson for two days, and I'm still gobsmacked by the horror of what happens when we lose our capacity to think. 

There were some macabre moments of levity. She managed to tie her shoelaces to each other. Fortunately I fixed it before she stood up. On her birthday, she put a red plaid flannel shirt on inside out, so the chest pockets hung like flacid bags. It looked great on her rail-thin figure—I predict we'll all be wearing our flannel shirts inside out soon. My teariest chuckles came when her old-fashioned red bat phone rang and she answered the TV remote. The TV came on, and the phone kept ringing. 

Another time she tried to answer a flat long paintbox set. In her defense, it did resemble a really big cell phone. The phone kept ringing, so I picked up the telephone receiver and held it out to her. She started mumbling into it. I tried to take the paintbox out of her other hand, but she pulled it away and stood there with a "phone" at each ear, muttering word salad. My brilliant funny friend.

My friend is still in there somewhere—I can see it in the art she makes—but her personality has shattered. She knows something is very wrong, and she's frustrated and scared. She has a minder every morning until her husband comes to do the afternoon-evening shift. She often locks the minder out of her room, paranoid to the point of tears, complaining nobody there likes her. Almost every morning, she packs a bag, determined to escape the prison. In fact, she got out a couple times. The airtag in her purse led to her rescue. She keeps trying. The first day I was there, she'd packed all her shoes into a big yellow bag, along with a couple mismatched socks, two cashmere scarves, and a toothbrush. Whatever it takes. 

Maybe it's some weird kind of blessing that the slow-motion car crash my friend is experiencing is taking so long. The pace of the disease gives us time to accept it, to say goodbye slowly, to grieve in smaller doses that aren't as painful or shocking as they would be if she'd died in an actual car crash. If I had cancer, I would want time to say goodbye. The problem is, her body lives on while her brain is dying. She could live on for several more years before her brain forgets how to tell her throat to swallow. Is it better to be aware or unaware that you are disintegrating? 

This week I got the news that another friend, an older man I served on a nonprofit board with, has decided to have his doctor remove the medical device that keeps his heart going. He's chosen the day and time. Day after tomorrow, 10:00 a.m. ET. He's said his goodbyes. A few hours after they unplug him, he will die. He's running to meet death. How badass is that? The medical system is geared to help us survive at all costs. We compassionately euthanize our pets but we pull out all the stops to keep the hopelessly ill people alive a few months longer, even if they aren't considered "terminally" ill. It's so uncivilized to usher our decrepits off the mortal coil "before their time." 

It's all just random, a slurry of genes, lifestyle, income, and social connections that determine our lifespan. Unless we opt out. Ha. Take that, fate, God, or whatever the hell you are.

As the week went on, stopped trying to understand. I learned to respond to my demented friend with compassion and encouragement, even though I had no idea most of the time what she was saying. I looked for the nuggets of joy. She lit up at the sight of her birthday cake, and for a few moments, I caught a glimpse of the person I used to know. 

I was grateful she knew me. I hated to leave, and yet I could not leave fast enough. On the morning I checked out, I kissed her cheek, told her I could not take her with me (she had packed all her socks), and got someone to let me out the lockdown door into the elevator lobby. I took my broken, raging heart down to the parking structure, got into my musty car, and drove out of that tomb into the California sunshine. Will I see my friend again? Maybe in another year she won't know me. 

That's a problem for another day. 

Today, I live.

Suffering is optional, and your misery can be refunded

The Chronic Malcontent here, coming to you from open desert somewhere between Parker, AZ, and Lake Havasu City. I’m parked on a swath of BLM land that looks a lot like a Marscape. Just over the rocky hill to the west is the famous Lake Havasu, invisible to me because I don’t own lakefront property, a boat, or a willingness to pay for a sardine spot in a campground along the water. I’m cool with it. Seen one lake, yada yada.

Last night I found a spot on BLM land along highway 62 about six miles outside of Parker, just over the California border. More Marscape. I was going to stay two nights, but my power station was running low. Solar generation was out of the question, given the rain pelting the region, so the only way to charge the thing up was to drive. Hence, new location.

I was in a store in Parker and got to talking with a gentleman from Michigan. I could tell he was from colder climes because of his sporty cargo shorts and sockless sandals. It’s not cold here (even by most standards), but by Arizona winter standards, the temperature is just a little below normal. I feel it. My blood is Arizona thin after several seasons. I bundle up, as usual, with hat and fingerless gloves.I’m on my way to Los Angeles tomorrow to see my demented friend. I am not looking forward to being back in L.A. I was just there last April. I seem to remember swearing I would never return. Kind of ironic, given I lived there for twenty years. I suppose the city has changed a lot, although it’s still sprawling and chaotic; more to the point, I have changed. Driving in cities is hard and unpleasant. I have come to appreciate the long vistas and time to think that come with driving on the open road.

The American West has a lot of open space, which is why vehicular nomads tend to gravitate toward this part of the country. In the winter, most flock to southern Arizona to enjoy mild weather. Case in point, the dude from Michigan. He comes down here every winter with his wife and stays in various places. I got the feeling he meant nice hotels and golf resorts, because they weren’t driving a motorhome, just a little van conversion with a bed in the back for her to sack out during trips. Reminds me of my parents. They did something similar, poor-man style. Mom slept while Dad drove. I’m guessing this is in large part how their marriage survived so many years.

What have I learned on my roadtrip so far? Nights are long and dark. Mornings are cold. I need more lights. I need less stuff. The challenges are the basic conundrums of finding new routines in a new environment. Tip: everything needs to have a place, and when you are done with a thing, put it back in its place, otherwise you will not find it for days.

My brain keeps slipping gears as it tries to parse this new reality. I’m searching for meaning where there is none. I’m here, that’s all. It doesn’t have to mean I’m a colossal loser, a moral failure. People who haven’t lived a nomadic lifestyle get judgy, as if being on a continuous roadtrip is a sign of mental instability. I admit, I get mired in self-recrimination at times. This isn’t what I expected, that’s for sure, but to see it as a failure rather than an adventure is just a rut borne out of my upbringing, family concerns, and societal opinions.

I don’t believe I create my reality. Everything is outside my control. However, I do believe I can choose how I want to perceive reality, and in that sense, my choices create my experience. It’s challenging to avoid the drag of outside opinions. Everyone thinks they know what is right, for me, for them, for the world. Good, bad, who is qualified to judge my perception of my reality except me?

Meanwhile, the work of writing continues. What else is there? I’ve decided to rebrand myself as Carol B, Roadwriter. Creativity lives on, as long as there is life and breath.

Wandering but not quite lost

I’m writing to you from Bureau of Land Management (BLM) desert land outside of Quartzsite, Arizona. BLM land out here occupies many square miles. You can drive forever on dirt roads, although the further you go, the more you need four-wheel drive. My city minivan would not survive most of those roads. Being a sedate older person not looking to drive off a cliff, I keep to the flats not far out of town.

I am parked about a half mile from the freeway, near a shallow wash and a copse of scrubby trees, about one hundred yards from a herd of half-million dollar Prevosts towing toy haulers. Earlier they were racing their toys around the desert landscape. Now the happy campers seem to be setting off fireworks. I don’t know why people bring their entire house with them to go camping. On the other hand, nights in the desert are dark, cold, and endless. I suppose it helps to have heat, cold beer, and a big screen TV.

Yes, it’s a bit chilly in my car at night, but I’m not complaining. I hear Portland is 16°F, with snow, freezing rain, and high winds. Other parts of the country are suffering extreme winter weather as well. If that is your situation, I’m sorry. Especially if you are living in your car.

Speaking of living in a car, I am not living in my car. Yet. I’m on my second official roadtrip, on my way to Los Angeles by way of Quartzsite, AZ. I have found my tribe here in Quartzsite, but in true apanthropist fashion, I don’t want to have anything to do with them. I got my name badge at the RTR, saw the interiors of Sprinters, cargo vans, and minivans designed by some proud nomads, and listened to a woman in a long gauzy skirt make noise, oh excuse me, soothing healing sounds, by pounding on some large bronze shields with a fluffy mallet. I left as soon as I could.

I did not grown up in a camping family, so camping is a mystery to me. My mother camped with her parents and brother. Then she married a non-camping enthusiast and had four kids. It’s not that my father lacked an adventuresome spirit. He had a boat for a while, a 24-foot Thompson with a throbbing stern drive. He took me out on the Columbia River Slough once. We broke down. A nice lady in a little motorboat towed us back to the dock. Then on the next outing, he hit a half-submerged log and busted the sterndrive. Soon after, he sold the boat. He never talked about it, but I am guessing he was sad the dream ended the way it did.

I never wanted a boat. Neither have I had a hankering to camp. I like to hike, but not if I have to dodge snakes or climb over boulders. I was born and raised a city kid, which is why being out here in the open desert freaks me out. The quality of darkness outside my covered windows is more than I can bear to think about. When the wind scoots under the car, I feel a momentary change in my heart rate. Every little rustle could be a packrat eating my wires. A couple nights ago a storm blew through and carried my tarp and welcome mat into my neighbor’s campground. Anita from Missouri. She parked way too close to me, so I befriended her in self-defense. Widow, two kids, long-time camping enthusiast. I vacated to a more peaceful location the next day, which is where I am now.

I can see why people buy bigger and bigger vehicles. This minivan is a very small space, crammed with way too much stuff. If I were inclined to claustrophobia, I would never be able to do this. However, I’m fine with MRI machines and small minivans. I will probably wake up in my coffin and go ho hum. Not really. I hope to donate my body to science and avoid the entire coffin thing.

I feel somewhat like a pioneer might have felt. Did I bring enough food? Can my oxen pull this wagon? Will my solar panel charge up my Jackery or will clouds get in the way? Where can I dump my trash when the transfer station is only open three days a week? Will I have enough cell signal to get phone service, and how close am I to running out of my monthly quota of data? You know. Pioneer problems.

Why do some people glorify this lifestyle? It’s homelessness. You should have seen the interiors of some of those rigs. They looked like garbage dumps, festooned with fake ivy garlands, carpeted with Persian rugs and fake vinyl plank flooring, and reeking of incense, cooked onions, and poop.

After seeing all that stuff, I am more determined than ever to continue my commitment to downsize. I sense I am headed off a cliff of minimalism. It’s been a gradual slope at first, but the incline is getting steeper as I am coming to accept that I cannot maintain a life full of stuff. I feel a mild panic attack lurking just out of reach. Time to pee in my bucket, turn on my heating pad, and hit the foam rubber. Happy trails.

I feel a road trip coming on

The end of a year inspires me to look past the daily grind of living to the broader panorama of my life. Maybe you could say I'm looking under the hood to see if my engine needs an overhaul. It's barely eight o'clock in the evening here in Tucson, and already I hear fireworks in the distance. Sometimes people like to set off rockets in the wash behind the trailer. If we're really lucky somebody will set something on fire (preferably not this trailer), and the sirens will inspire a coyote chorus. Nothing says you live in the stupid cold desert like hearing a bunch of howling coyotes. 

The drawing you see here is from 1997, when I was in freefall between Los Angeles and Portland. I was trying to look on the bright side. What did I know about being homeless? Clearly nothing, judging by the insipid enthusiasm on my face (yes, that is a self-portrait, and yes, I used to have hair in those days). I was just as prone to magical thinking then as I am now, but my yearnings these days are tempered by cynicism borne of aging. It's hard to conjure much enthusiasm for adventure (or fireworks) when one is worn out from the trials of being alive. 

Oh, woe is me, I'm alive. What a tragedy. 

Being alive beats the alternative, but it's hard sometimes. The air pressure ebbs and flows, which means my vestibular system is swamped at least once per minute. The noise in my right ear is deafening. My neck aches from valiantly trying to hold my head straight, to keep my sightlines steady. When my eyes are closed, I lean to the right, so I try not to close my eyes when I am standing up. Walking in the dark is difficult. Dangerous, probably, but when you gotta go, you gotta go. I don't think this vestibular paroxysmia malady is getting worse, but it's not getting any better. I am waiting impatiently for my visit to the neurologist in February. Maybe she'll have some answers about this downed powerline in my head. It's just as possible she will tell me to quit whining and send me home. 

Home. I still hope such a place exists. I plan to continue my quest. I could give up, surrender to Tucson, admit defeat, tell myself it doesn't matter if I live in a place that doesn't feel right to me. I could just suck it up, along with my physical maladies. But with the housing situation the way it is, I can't afford even the roach-ridden gun-infested sleazebag apartment I rented the first year I came here. My options have dwindled, and I don't think it's my fault. Rents have gone up all over the nation, and low-income seniors are being hit hard. I feel it. It hurts.

I was forty years old when I left Los Angeles to move back to Portland. I had parents then. I had a long-distance relationship that quickly fizzled and morphed into another quasi-committed relationship. In other words, I had multiple safety nets, the lowest and most moldy of which would have been my parents' basement. I never really worried about being homeless. It was kind of a cool bohemian dream, to be a vagabond. The nomad vanlife wasn't a thing yet (because YouTube hadn't been invented yet), although people did travel and live in motorhomes. I remember thinking it would be cool to live in a living room on wheels. I had a vision of selling paintings of mountains and waterfalls from the back window of my peddler's art wagon. My partner at the time was equally enamored of the possibilities of the nomad lifestyle, probably because he hoped to fly under his ex-wife's radar, maybe avoid paying taxes, skip out on child support, that sort of thing. Me, I just wanted freedom. 

Speaking of freedom, I'm headed out to Quartzsite in a week to hang out with the vanlifers, nomads, RVers, and schoolies. It will be crowded. I will not be alone. I will not be lonely. I will find kindred spirits. Or I will enjoy my solitude—just one small minivan among many travelers—cook food on my butane stove, and catch up on my sleep. I'm not sure what the internet situation will be. I don't really care. 

After that desert rendezvous ends, I'm planning on visiting my demented friend in Los Angeles. She's in a place now for nutty seniors. I complain a lot about my cognitive abilities (and I'm sure I'm dropping typos in my blogposts like my mother used to drop used tissues from every pocket), but I can still think and make decisions. Not great ones, sometimes, but I have autonomy. My poor friend has lost her ability to think, just like my mother did over the last few years of her life. But my friend is not even seventy. My heart is broken. 

Well, whose isn't, these days? If you haven't had some heartbreak in the past year, lucky you. I hope 2024 is better for all of us, no matter what kind of year we had. For those of us who struggle, I offer the familiar maxim, so 1970s but still true: not all who wander are lost. 

Got my oil changed and suvived to write about it

I'm always shocked when my car speaks to me, but I've learned to listen when the horrible chime jangles my nerves to tell me something needs attention. Most of the time it's the dreaded check engine light, the bane of my existence. Once it was an issue with the gas cap not being closed all the way. Recently the message in the odometer window was "low tire." My car plays coy, though. Not going to tell you which tire is low, ha ha, you figure it out. Given the weather had turned cold, I suspected it was all four. I am now the proud owner of a tire inflator machine. So fun. 

I'm glad my car has enough of a brain to tell me when something is wrong, rather than shutting off with no notice and leaving me stranded, as has happened with cars in my past. They did the best they could. I'm sure someday if I live long enough I will have a car that actually talks to me. Not like that car in Knight Rider. I'm thinking more along the lines of My Mother the Car. I can just imagine my mother being reincarnated as a 1994 Toyota Camry. Nothing fancy. She would say "I need an oil change and Jiffy Lube is having a special, but don't let them sell you an air filter because I don't need one yet, and you can do that yourself." 

My car has the brain of an infant savant, more or less. It doesn't speak, but it makes noises that get under my skin, particularly that gruesome chime. I hate that sound. When my car dinged a couple days ago as I was firing it up to go shopping, I was confused at first, because the check engine light was blessedly dark. Then I saw the message in the odometer window: oil change.

According to the sticker dangling in the corner of my windshield by the last oil change provider, I should have had another thousand miles, but I stopped patronizing that shop because I finally figured out, after thousands of dollars, that they had taken advantage, and not only that, they smoked weed as a group in the back of their shop, which is right by the bike path where I frequently walk. Nothing against those who indulge, as long as they aren't working on my car while they do it. Anyway, I found a new mechanic in the neighborhood. So when my car told me it wanted new oil, I went there.

Sadly for me, the gray clouds that had threatened to explode finally did, which is good if you like rain, as we often do in the desert, but this rain was the kind I know from the Pacific Northwest, that is to say, the kind that moves in and squats over the city like a brood hen trying to hatch a cold dead egg. In the desert, I've come to know the nature of monsoon, the weather phenomenon that boils up out of nowhere, destroys the place with lightning, hail, wind, torrential rain, and flash floods and then evaporates, leaving you wondering what the heck! This week's rain was not like that. The radar showed Tucson under a huge green splat, which meant it was going to be raining for a while.

I drove to the mechanic and dashed through the rain to the office. I was greeted by a surly middle-aged man who reluctantly agreed to do the oil change on the spot (well, within three hours) and what kind of oil did I want? Like I would know the answer to that question. I said, "You are assuming I know the answer to that question." He looked at me with that long-suffering look I've seen on countless sales reps' faces over years and years of me not trusting that I know more than I think I do. Finally we figured it out, and pretty soon we were getting along. 

"Are you going to wait or are you going walk around the mall?" he asked. 

"Oh, I'll go hang out at the mall," I said, like an idiot. I had a raincoat. How bad could it be?

I'd forgotten it was a few days until Christmas. I don't pay attention to the holidays, except to be annoyed that they encroach on my routines. I guess I assumed yet again that everyone else was like me but you know what happens when we assume. I headed off in the rain toward the mall and soon realized I was way out of my comfort zone. Even on a good day, malls are trying to kill me. During this Christmas shopping season, a sense of desperation and panic hung over the whole retail neighborhood. The streets were jammed with SUVs all trying to turn into the mall parking lot without getting T-boned by oncoming traffic. Pedestrians had no chance, but what choice did I have? Sit in the waiting room? I chanced it. 

I wandered the edge of the wide parking lot past the empty Sears store, crossing the traffic lanes near JC Penney, and meandered past REI and the Container Store, loathe to actually go inside the mall itself. As I stumbled over curbs and puddles, I got the bright idea to walk up the street to Best Buy. I needed new headphones, and it wasn't too far away. On a good weather day, it would have been a pleasant stroll. Not today.

Between the rain and the speeding cars, I was a soggy ragged breathless mess by the time I got there. Unbeknownst to me, my raincoat had lost its ability to repel water, so I was drenched through my hoodie sweatshirt through my T-shirt through my tanktop to my skin. My sweatpants, so cozy just an hour earlier, were soaked from the knees down. I was half-blind from glasses covered with raindrops. Lucky for me, not expecting to have to walk very far, I had worn my thirty-year-old waterproof Merrell mules instead of my sneakers. Thus, although tired, my feet were warm and dry. 

I made it to Best Buy, found the things I needed, and ventured back out into the slogfest. No letup in the rain, no letup in the traffic. If anything, both seemed to be growing more intense by the minute. At the intersection between me and the mechanic's shop, I made sure to press the walk button. With my eye on the walk sign and the opposite curb, four lanes away, I watched for oncoming traffic making a left turn in front of me. All good. 

Lucky for me, out of the corner of my eye, I saw the huge black monster truck making a right turn as I stepped off the curb. I don't think the driver saw me, at least, I hope that is the case. I hate to think they made that dangerous turn on purpose. The holidays can make people do things they would not normally do. I can be magnanimous now, given I lived to write this blogpost. 

I stopped walking and let the truck blast by in front of me, close enough to touch. I had time to admire enormous rugged tires. I wasn't thinking at that moment, oh, nice tires. In that moment, I yelled and gestured, which felt pretty good, actually, since I rarely yell and gesture. I dashed across the street and made it to the far curb unscathed, calcified heart valve pounding. 

As I continued my walk, I was gifted with more opportunities to yell and gesture, this time at the drivers who sped through the standing water, drenching me as I walked on the sidewalk. If it hadn't been so miserably uncomfortable, it would have been hilarious. I could have been starring in a rom-com. Hapless hero facing conflicts before achieving the goal of happiness, which in my case was getting back to my car alive.

I returned early to the mechanic and sat shivering in the waiting room scrolling through my phone like a zombie. Eventually my car was ready. Now I know the holiday spirits were looking out for me, partly because I survived the walk to Best Buy and back, but mostly because the mechanics didn't find anything else wrong with the car, other than the obligatory notice to get my fuel injectors cleaned. I'll wait until my car tells me its time.

Happy holidays from the Hellish Handbasket. Hope your new year is better than the last.

Happy holidays from the Hellish Handbasket

Here we are again, heading into another holiday season. It's not my favorite time of year, because 75°F is still too cold for this hothouse flower. And because grocery shopping is twenty times more difficult. And because one of my preferred radio stations seems to have sold its soul to the Christmas music devil. And because one of the neighbors here in the trailer park gave me a little loaf of banana bread and a baggy of Chex mix and I ate them both in ten minutes. For all those reasons [urp], this is not my favorite time of year. But what do you expect from a self-proclaimed chronic malcontent?

I'm kind of over the malcontent thing. With all the troubles in the world today, it seems pretty self-centered to act like my little dramas are so important. I may be heading toward houselessness, but at least bombs aren't falling on my head. I mean, we need to keep things in perspective. Yes, I ate the entire loaf of banana bread but that constitutes dinner, and tomorrow I will do better, because the banana bread is now gone. 

I'm learning the only way through these strange days is to keep my head down, focus on what I can do here and now, and not get enmeshed in other people's drama. Some people like drama. Just because I got weary of self-made drama and let it go doesn't mean other people have to do the same. Drama can be fun and exciting. I used to be a drama addict. Now, all I have to do is remember that one of my close friends has dementia, and another friend's mother just died, and I get back to right-size. Good things happen sometimes. It's not all bad. I mentioned last week I didn't get that job I had applied for (which probably would have changed my life, at least for one year), but I had some editing work this week. I keep showing up for life, and somehow I keep on living. So weird. 

Meanwhile, I continue to write a story a day, why, I'm not really sure. You can't really call them stories. More like . . . scenes. Musings. Little upchuckings. Sometimes I have an idea of what I want to write. Stories come to me while I'm out walking. That's fun, trying to see if I will remember them by the time I get home. Other times I open up the page and stare at it. Classic writer angst, right? To bemoan the blank page? I don't really bemoan anymore. As long as it's not the white screen of death, I'm good. I just start typing. Kind of like how I'm writing this blog right now. Wow. So meta. 

Here are a few holiday wishes from the Hellish Handbasket. I hope this holiday season is joyful for you, or at least not miserable. I hope the weather doesn't totally suck where you are. I hope the suffering you might be feeling doesn't drag you down into depression. I hope your family doesn't criticize you too much and if they do, that you have a safe place to hide out with a good book. I hope you can experience the holiday lights, the aromas, the shoppers, the music, without going completely insane and wishing you could hibernate till spring. Please don't poke your eyes out. Please don't overdose on oxy. Please don't eat an entire loaf of banana bread at one sitting. Be kind to yourself, just for a few days., till this thing is over. We'll get through it together. Then in January we can commiserate when winter really hits the fan.