Change is coming

I miss my stuff. Almost all my possessions are ensconced in a 5' x 5' storage unit over by the mall. The cubicle is 8 feet tall, otherwise no way could I have stacked my shelves, bins, and boxes into that small of a footprint. I marvel at how many possessions I still have, given all the moving and downsizing I have done in the past three or so years. Swedish death cleaning may be a thing, but in my case, it has not resulted in total cleaning . . . or death, I might add, so there's that.

Speaking of death, I'm feeling transparent these days, uprooted, barely clinging to something I don't recognize anymore. I just want to get away from everything, but of course, that is not possible, because as we know, wherever we go, there we are. However, I can live with myself in my own brain. What I cannot live with for long is the clamoring of well-meaning people who think they can save me. Or the criticisms of confounded people who can't understand why this is happening to me, given how white and well-educated I am. Or the judgments of fearful people who subconsciously realize their lives are one wildfire or flood or divorce away from being in the same predicament. 

I can live with my own fears, but I can't manage the fears and criticisms of others. 

Meanwhile, my dear friend from college is sinking fast into some terrible form of dementia. I don't know what the diagnosis is, but who cares what it is called when it's obvious her brain cells are exiting stage right, like rats from a sinking ship. Folding, perforating, evaporating, no idea what is happening in that head, but it is total disaster. Nothing is firing right in her brain anymore. It's utterly terrifying to witness. I could hardly sleep last night, and I'm not the one experiencing the inexorable disintegration of my executive functions. It's one thing when it happens to your 90-year-old mother. It's another thing entirely when it happens to your same-age friend. Death is staring her in the face, and she can't even find the words to express her despair. 

I'd rather have cancer, to be honest, than dementia. I can only pray to the gods of young drug addicts at the U of A campus that there will be a handful of fentanyl tabs left for me when it's time to go to the great art school in the sky. And that I remember what they are for and why I should quickly take them, before someone else does. I do not want to go gently into that big state-run memory care tenement, where I will be ignored by underpaid medical assistants and abandoned by distant family to overloaded social workers. I'm pretty sure there will be no internet. I mean, I ask you! No internet. If that happens, if I have a brain cell left in my head to make a decision, I will make a run for it, somehow, I will find a last shred of freedom. I'm not ashamed to be a silver alert. 

It's monsoon in southern AZ. It sucks, but no more than any other season here. I feel so out of place. I thought I would love this place . . . warm, dry, what's not to love? I used to chase the sun. In Portland, even as a kid, I would perk up whenever the sun came out. Clouds were my enemy. I craved blue skies. In Los Angeles, the sun was a gentle presence, filtered by fog and smog. Skies were pale robin's egg blue, like a fine china teacup. Not so in the desert. When the sky is blue, the sun is my enemy. Clouds are my shelter, even when winds are whipping up the dust and I'm dodging rain drops. I'd rather be struck by lightning than let the sun touch my skin.

The first monsoon was exciting. So energetic and raw, who knew! The novelty quickly wore off. If you've seen one spectacular desert sunset, you've truly seen them all. I have grown to hate this place. And this place hates me right back. No matter how many knuckles they have, or how gnarled their fingers, all the cactuses on all the hillsides everywhere I go have their middle fingers raised. Every last cactus in this dirty, noisy, unholy town is flipping me off. I ask you, have you ever been so aggressively dismissed by nature? I know. It seems impossible, and yet, everywhere I go, there they are, these angry bitter saguaros, telling me, You don't like it here? Go back to where you came from, gringa blanca. 

I don't want to go back to where I came from, but I know I can't stay here. I seem to have a habit of moving first and regretting later. Maybe this time I will try a new strategy. Maybe this time I will look first before I leap. Regret might follow, but at least I can say I tried my best to keep my eyes open. 

One way out

As I walked along the bike path next to the Rillito River this afternoon, dodging bicyclists and enjoying the winter sun baking the back of my neck, a bicyclist rode by and said, "I saw a prairie dog." He could have been talking on the phone using invisible Blue Tooth earbuds, but I assumed he was talking to me, so I said, "Prairie dog?" He was long gone but I looked around to see if I could spot something poking its head up out of a hole in the ground. The dry riverbed was wide, full of sand and scrubby trees, probably good habitat for a critter who burrows, at least until monsoon floods sweep it into the next county. 

Not five minutes later, another bicyclist rode by me and asked, "Did you see the pigs?" She sped on by before I could ask, "Do you mean javelinas?" I assumed she wasn't from around here, maybe a newbie to Tucson, unlike me, the almost two-year resident to whom javelinas are as common as possums. Ho-hum. A couple days ago, I saw a dead one on the side of the road as I was driving by. If you see one dead javelina, you'll probably see more. They travel in squadrons. After the bicyclist had gone by, I thought, there is a possibility the woman was talking about pigs on the phone with someone in Nebraska, not addressing me at all. 

I always make everything about me.

Speaking about making everything about me, yesterday was the second anniversary of the death of my maternal parental unit. The whole day had a bit of a gray tinge to it. I try not to think of her last hours. I try to remember her from before 2016, but it's as if I'm conjuring two different people. Before she moved into the retirement home, she was strong, independent, and opinionated. Dementia was chipping at her brain, though, and soon the foundation of her independence crumbled. Now the mother I remember is the one I moved into the care home at the end of October 2020, the one I saw every evening after dinner, the one I bundled up in fleece so we could sit outside six feet apart, the one I tried to keep alive even though we were both trapped with only one way out.

I went to the care home every evening, thinking to myself, someday I won't be doing this, also thinking, god, I hope I don't have to do this for the rest of my life. 

And then it was done, and now I'm here, and I need to be someplace else, but I don't know where yet.

I used to welcome the new year, but not anymore. Tomorrow is the third anniversary of the death of my beloved cat Eddie. That day scrapes a hole in my heart every time I think of it. I guess I should be thankful Mom and Eddie didn't die the same year. That would have been the end of me.

No wonder my heart stutters. No wonder I can't get my balance.

After the latest heart scan, I'm ignoring my heart, even when it swoops and pounds. I don't want to fret about it anymore. I'm not imminently dying so what else is there to do but pretend like it isn't happening? Works for me. As far as the balance problem goes, the remedies seem to be the same, no matter the diagnosis. Do I have BPPV, PPPD, MD, VM, or something else? Who knows, who cares (not the ENT, that's for sure). The usual treatments are changes in diet (for migraines), medications (for migraines, seizures, depression, and anxiety), vestibular rehabilitation therapy (to retrain the brain, eyes, and ears), and cognitive behavioral therapy (for depression and anxiety).

Adjusting my diet seems to have no effect on my disequilibrium, unless I eat processed food, which gives me migraines but doesn't affect the vertigo. As for the second option, I'm not willing to add to my meds list, period. I already feel like a drug addict. Third option: Am I depressed? I don't think so. Am I anxious? Sort of, but not to the point of panic attacks. I think anyone contemplating moving everything without knowing their destination would be entitled to feel some anxiety. As for therapy, I'm always happy to dump my problems on someone who gets paid to listen to them, but it seems like a lot of work, and I don't think it would be all that productive. What would they tell me? It's okay to feel anxious, your life is a mess? Thanks, I already knew that. The only option worth pursuing in my inexpert but essential opinion is vestibular rehabilitation. I might try to get a referral but each session with a vestibular therapist will cost me, so I'll probably stick with Dr. Google. You can bet I've been reviewing all the videos I can find, and there are thousands. 

Meanwhile, I didn't think I was much of a gambler, but maybe I was wrong. I'm putting all my money on location, location, location. I recognize that packing up and heading west might not produce the desired outcome. What I mean is, doing a geographical might not make my spinning head feel better. What is Plan B? Thanks for asking. I have some ideas, but for now, let's stay out of the wreckage of the future. 

Happy holidays from the Hellish Hand-basket

Another year plods to a close. How do individual moments seem to drag when days, months, and years speed by so fast? The moments of 2022 blend together into a big blur of terror and boredom. 

I'd recap but memory fails.

My friend asked me if I was depressed. I said, I don't think so. After our call, I looked up the symptoms of depression. While I was at it, I looked up the symptoms of anxiety. You'll be relieved to know, I don't have either one. I might have signs of dementia, but it's too soon to know for sure. 

I'm pretty sure, though, that I am still grieving.

Just plain old garden variety grief, not so much for what I’ve lost, although that lingers, but more like grief for the idea of home that didn’t manifest for me since coming to Tucson. I sought a safe affordable home in the desert, and I got a temporary fix, which is grand, but long-term, Tucson did not turn out to be the answer for me, and that makes me sad.

As long as I'm grieving, I might as well add other losses to the list. I’m sad that suddenly I have to take so many meds. I’m sad that my heart is glitchy. I’m sad that my ears won’t settle. I’m sad I will end up joining the vast numbers of "car camping" nomads while I look for my new home. It's going to take a miracle. In other words, luck and persistence.

As long as I'm sad for myself, I might as well add my tears to the universal mix. I’m sad that so many people around the world are suffering. Near and far, life is hard and people suffer. Life has always been hard. People have always suffered. On a suffering scale, is it better or worse now, compared to decades past? I have no idea. How do you define and measure suffering? Can I say I suffer more than you suffer? To me, being cold is suffering. Hothouse flower.

Today is Christmas day. Two of my siblings got on the Zoom today with their respective significant others to do the obligatory monthly family Zoom, which just happened to fall on Christmas day. One sibling was absent. He has always blazed his own trail. Even as I send him texts (where are you? Family Zoom happening now!), I envy him his detachment. There's freedom in remaining unattached.

My family detached from Christmas years ago. When the parents were alive, we'd go out to eat. No cooking, no cleaning. Then we detached from the season by adopting a round-robin secret Santa gift-giving exchange among the immediate family members. Before long, we stopped giving gifts all together. Dad died, Mom became demented, I was broke, my younger brother was busy, and my older brother didn't care. 

Only my sister seems interested in carrying on any sort of family tradition or ritual. Channeling Mom, she sent me a toothbrush for Xmas 2021. This year I asked her not to. I can buy my own toothbrushes. But I think she was trying to hold family tradition together. As we get older, traditions have tattered. Memories have faded. We are widely scattered with no parent to glue the family dregs together. Interest and energy are circling the drain. 

Speaking of family rituals, next spring I'm planning to take a road trip to Oregon. If all goes according to plan, my sister will fly out from Boston. We will drive down to the coast and scatter Mom's ashes on the Columbia River at the same place we scattered my father's ashes, if we can find the place. It might have been washed away by time and tide since 2005 or whenever we did that ritual. Mom's been in a box for almost two years. It's time we set her free. Not that she would care—Elf on a Shelf, Mom in a Box—but I suppose my brother could use the shelf space.

It's possible that I will discover my next home somewhere on that road trip. Fingers crossed.

Stop making sense

If I could sum up my primary problem in one sentence, it would be this: I can't stop trying to make sense. Sense of my life, sense of others, sense of life in general. In other words, I keep trying to figure it all out. If I would just stop trying to make sense of everything, if I could stop trying to manage and control everything, maybe I could relax, maybe I could take things as they come. 

Do I want to relax? Thanks for asking. Apparently not, otherwise I would stop trying to make sense of everything.

The gentle yet brutal vacuum known as Swedish death cleaning appears to be sucking up the last dregs of my past. In my ongoing quest to make sense of my current so-called life, I spent part of the day purging a few more of my possessions. I persevered, even though I felt a little short of breath today. Either my heart is not pumping right or the air here in Minimal Town is growing more rarified. Am I rising in elevation as I jettison unneeded ballast, like a human hot air balloon? No wonder my inner ears are going crazy.

Today the item on the death-cleaning chopping block was my old mailbox. You might think, Carol, really? You dragged a mailbox with you all the way from Oregon? What kind of nut are you? 

Thanks for asking. I'm the kind of nut who paints mailboxes and then enjoys receiving mail in them for eighteen years and then decides when it is time to move away, that maybe there will be a place in my future life for my hand-painted mailbox. 

That kind of nut.

When I got to Tucson, it was pretty clear there was no place here in the desert for my hand-painted mailbox. Most apartments already have mailboxes. Even if I had needed a new mailbox, the colors definitely reflect a Northwest vibe—no Southwest desert colors on this thing. It's mostly orange blobs on a green-blue background, with some purple in there to make it pop, somewhat faded after eighteen years weathering Portland weather. I don't actually remember painting the mailbox, although they are definitely my colors, but I remember building the hand-painted wooden base with which I installed it on the metal railing outside my door at the Love Shack. It was a cantilevered contraption built of wood and bolts (also painted purple, orange, and greenish blue). The base kept my mailbox in an upright position until the day I dismantled it. I threw away the base and packed up the mailbox. Yes, I dragged it with me all the way from Oregon to Arizona. 

Today was the day I decided to let it go. I took a photo of the mailbox and put it into the give-away pile. 

As it turns out, there might be a place here for that mailbox after all. My housemate rescued the mailbox from the give-away box. With a stencil and a little green or blue spray paint, the number on the front can be revised to reflect the address of the Art Trailer. The Love Shack mailbox will live on.

I can't really express how happy and relieved I feel about the repurposing (I call it the resurrection) of my old mailbox. I have berated myself multiple times for bringing so many ridiculous and useless possessions with me from Oregon. Looking back, I realize I was out of my mind with panic, grief, and fear. It's no wonder I made some foolish choices. Some of the possessions have been easy to let go. The mailbox was one of the last pieces that had no purpose here, other than to remind me of what I've lost. 

I think the mailbox represents a time in my life when I had things more or less figured out. I wasn't exactly thrilled with my life in Portland, but I knew my place in it, and things made sense to me. I knew whose daughter I was. I knew whose employee I was. I had plans, and I was getting things done. 

I always knew that time of my life would eventually end. Employers go bankrupt, cats go to heaven, mold infects apartments, and old people get dementia and then die of an aneurysm. Life (and death) happen. I guess that is the only sort of sense I can derive from my experience. Life and death happen. I experience things, but I do not control them. For reasons I can't explain, it gives me hope that my old mailbox will live on after I'm gone.

Optimism is optional

After a year in the Bat Cave, it's that time again. Time to pack up and move. I'm ready but I'm still feeling anxious. Maybe I should treat moving like an annual pilgrimage. Some people move a lot. Not me. I spent the last twenty-four years in Portland. I was in one apartment for eighteen of those years. Moving to Tucson was a shock I'm still not over. 

It feels traumatic to put everything I own in my car and take it someplace else. I've been dreaming about unplugging computer equipment, packing Mom's TV, loading up my bed platform, stacking boxes and bins so they don't slide around and brain me while I'm driving. I don't know why I'm fretting. I'm not moving far. It's probably about a mile from the Bat Cave to the Trailer. And nobody is forcing this on me. I can only blame myself if I forget how to reassemble my computer. I think I'm feeling some PTSD from my move to Tucson last year. That move involved a U-Box, a car filled to the brim with possessions, a 1,500-mile road trip, a bad Google map, and a deadline. Needless to say, that move was fraught. I break out in a sweat when I remember driving alone for hours on I-93 through Nevada.  

I have another couple boxes ready to take to the thrift store, a few more used-up items to toss in the trash. I should be glad of the opportunity to pare a few more things out of my cold arthritic hands. It is good to own less, consume less. However, downsizing makes me sad. I know where downsizing leads. I remember helping my mother downsize. From the big house to the smaller house. From the smaller house to the condo. From the condo to the retirement home. From the retirement home to the care home. From the care home to a box currently on a shelf at my brother's house. Downsizing isn't only about letting go of possessions. It's about letting go of people. Of place. Of life.

It's raining again. This afternoon the southern sky turned black. The wind kicked up, sending leaves and trash skittering around the parking lot. Lightning flashed a few times, followed by rolling thunder. Then the rain came pelting down. It's happened almost every day this week. My neighbors and I no longer open our doors to marvel at the moisture falling from the sky. Ho hum. It's nice to feel cooler air, even though the ground will be dry thirty minutes after the rain stops. I prefer blue sky. 

My days are punctuated by Zoom meetings, planning the next novel, doom-scrolling, and getting weather alerts on my phone. Waves of grief wash over me from time to time. I have the luxury of riding the waves. I'm not at risk of flash flooding. I might be at mild risk for depression. I am missing my cat. I'm missing my mother. I am missing my old life. I used to know where I was. Now I sometimes forget where I am.

It's hard to feel excited about life when I am feeling sad. I should make a gratitude list. Let's see. The rain is amazing. I haven't seen a cockroach in over a month. The power hasn't gone out. I published my book. My car is running well. I haven't heard any gunshots lately. I don't have a hernia. See? Lots to applaud. I don't sit around paralyzed by grief. Optimism is optional. Despite my discontent, I carry on. 

Gaslit by a gas cap

I talked with a friend on the phone tonight. It's a welcome distraction to listen to someone else's problems so I don't have to think about mine. Is that selfish? Immersing myself into someone else's story to avoid reading my own? Today was one of those days I would rather have been someone else. Not because anything bad happened. I accomplished the things on my list. By my usual standards, today was a good day. So why did I feel like crap?

Today I got gobsmacked by grief.  

The morning started out normal enough. I was thinking about getting things done. Tomorrow I have my first appointment with a doctor under the Medicare regime. I'm going to a new clinic to meet a new doctor at a new healthcare provider system managed by a new insurance company. As I fixed my breakfast, I found myself telling my story aloud, rehearsing, you know how you do that? You don't? Hmm, I guess it's just me then. Embarrassing. As if I'm going to be allotted a couple hours with the new doctor to describe what the past year has been like. As if the poor doctor has time or interest. I have to remember to be especially animated with my eyes and hands, because I'm sure I'll be wearing a mask the entire time. 

As I chopped zucchini, I started to feel sad. I haven't told the story for a while. I'd forgotten what I might feel when I remembered the day Mom died. Remembering that day hurt, remembering the look in the nurse's eyes when she gave me the news, how shocked I felt, but what hurt worst of all was remembering the last few months of Mom's life, sitting outside the care home in the cold, trying to keep her with me just a little longer. We bundled her up in fleece. I have photos. She looked like fleece-wrapped bug, six feet away from me, still smiling. We talked about people we used to know, places we used to go. I remember her smiling a lot. She couldn't see me smiling because I was hidden behind my plaid cotton mask. 

Today I chopped broccoli and told the story to my empty apartment, rehearsing. 

Oh man. Time out to cry. I can't tell you the story of me telling my story to myself without feeling things I don't want to feel. I've been so busy moving here. Now I've stopped moving, there's no place left to go, I'm here, it's time to stop running, which means it must be time to start feeling.

I miss her. I miss those few months when she was alive and happy and I still had a mother. I had a purpose, I had a place, even though I itched for it to be over so I could go live some other life. Now I'm in that other life and it hasn't coalesced yet into something I recognize. I don't know who I am, I don't know where I am, I don't know where I'm going. 

Does anyone, really? We pretend like we are the masters of our fates, the grand designers of our lives. We don't know anything. 

Yesterday I ran an errand for a friend. As I was driving to the pharmacy, I heard that dreaded sound, the ding my car makes when it is trying to get my attention to tell me something is wrong. Ding. That horrible ding has meant the car is about to siphon $500 more dollars out of my dwindling bank account. Fingernails on a blackboard. 

I stopped at a light and peered at the dashboard. I didn't see any lights, so I was like, what is up with this car? Is it a existential cry for help? A bit of automotive angst expressed through a plaintive ding? Then I saw in the little odometer window a word had replaced the mileage number. It looked like the message was 9ASCAP. 

You probably see it right away. I did not. After hearing that sound, my brain cells had gone into freefall. ASCAP! Nine of them! Have I violated musicians' rights somehow? 

When I got to the pharmacy, I dug out my phone, Googled 9ASCAP, and started laughing. Right on! Gascap. The 9 was actually a lowercase g. My brain had failed to parse the letters correctly. I blame grief, old age, early dementia, and fear of economic insecurity. Any or all, take your pick. 

I went into the pharmacy and picked up the thing for my friend. When I came out, I checked my gas cap, and sure enough, it was loose. My beast! I screwed it back into place. The light didn't go off right away, but I drove gamely forward, and it went off somewhere between the pharmacy and home.

 

Take me with you

The death of my cat smashed a hole in my life last week, leaving me a shattered mess. I've done my best to ride the waves of grief as I clean up and reclaim my space. It's not easy.

Thank you to all who reached out to sympathize and console me. Thank you to my sister-in-law who carted off the leftover cat food and cat litter. And the toys, fleastop, and fur grooming devices. I hope she will come with a truck and take up the six-foot tall cat tree occupying five square feet of my living room.

This week, I've coped by staying busy. I felt compelled to move furniture around, to take down the cat perches in every room, to do all the noisy home projects I postponed to avoid disturbing sacred nap time. I washed four loads of cat bedding. I vacuumed cat hair tumbleweeds. Even so, tiny balls of fur remain, stuck like burrs to blankets and rugs and all my fleece pants.

A thirteen year relationship ended in the space of two fraught days. I still can't believe he is gone. That cat was my parent, my child, my spouse, my business partner, my interior decorator, my personal trainer, my meditation coach, and my best friend. He filled more roles than any human could, and he did it with something as close to unconditional love as you will ever find in a living creature. I would gladly trade a lifetime of cat litter in my bed to have that cat back again.

People who are not cat people have asked me when I will get another cat. As if cats are interchangeable. As if any random bundle of fur will do. I can't imagine another cat taking Eddie's place. Cats are no more interchangeable than are spouses or children. Maybe someday I will welcome a new cat, but it won't be to replace Eddie. He was one of a kind.

Grief has its pace and tone. I don't need to defend or justify my sorrow. Let me put it like this. I don't care if you think I should be over it by now. I try not to burden others with my sorrow. However, sometimes grief takes me down. Not for long. I can't breathe when I start keening. My congested sinuses don't allow much wallowing. Still, I feel what I feel. I can't be your Little Mary Sunshine. I can't get my face to fight gravity right now. Every part of me sags. If you spent thirteen years with something you loved, you'd miss it if it suddenly disappeared. The pain of loss is physical. I would gladly trade my mother to hold my cat in my arms again.

I dread coming home to an empty house. My heart tears open that moment when I enter and smell only mold and cooked onions. The place smells unoccupied now, like no one lives here. The absence of his presence is profound. For a small creature, he commanded a lot of space. He was sixteen pounds of energy, even when he was sleeping. That was never more clear than when the vet gave him a sedative. My weary sick cat sank into my arms, all sixteen pounds, nose in my jacket, finally at rest, finally out of pain, while I stroked his fur and dripped tears. I wish I could forget that moment. I wish I could freeze that moment in time. Stop time, right there, when he was alive but not in pain. Twenty seconds later, he was dead.

Maybe if I had had more time to let him go, this wouldn't be so hard. You know, months or years of pumping him full of treatments to keep him going so I could postpone this awful moment. We had thirteen wonderful years together, just us. He suffered two days and exited, stage right, leaving me in free fall. I don't know what comes next, but now I'm closer to finding out.