Showing posts with label health scare. Show all posts
Showing posts with label health scare. Show all posts

October 02, 2022

My heart is broken

How many times over the past couple years have I said "my heart is broken"? Haven't you? More times than we can count, probably. We've all had losses. My cat died at the beginning of the pandemic. I still haven't recovered, I doubt I ever will. Then Covid swept us under. So many people lost loved ones. Mom dodged Covid but died of an aneurysm in her upper GI tract almost a year to the day after Eddie died. Then wham bam, four months later, I find myself in Tucson, just in time for monsoon and wondering what the heck happened.

After a bizarre year at the Bat Cave, finally I come to rest here in the Trailer Del Arte. I thought, finally, a place to breathe, to catch my breath. A place to regroup and figure out what comes next. Not so fast, the Universe seems to be saying. This week I got the unsettling news that my heart really is broken. Not just emotionally and metaphorically, but also physically. 

WTF, Universe!? 

The "small murmur" turned into a rather alarming diagnosis of aortic stenosis. "Mild to moderate" calcification of the aortic valve. Better than "severe" I guess, but any amount is not good. Apparently my valve has an amount of calcification that would typically be seen in a person in their 70s or 80s. The question is, what type of valve do I have? Is it a two-leaf or a three-leaf? Nobody knows, which is why I have a referral for a CT scan. Lucky me. Ho hum. Another scan. 

Meanwhile, I am now the proud wearer of a little white box attached to the left side of my chest. It's about an inch and a half square and it sits in a blue plastic casing that is permanently attached to a piece of tape that is glued to my chest. Inside the piece of tape some electrodes are embedded. This strange limpet communicates with a slim shiny smartphone, which must be within thirty feet of the sensor at all times or it throws a hissy fit. The sensor communicates with the smartphone, and the smartphone transmits my EKG in real time 24/7 to some company somewhere, God only knows. Far as I know, there is no GPS, so I am not being tracked. Not that I'm going anywhere. 

So this thing has to cling to my chest for thirty days. I can shower with it on. Every few days or so, it needs recharging. I did that yesterday. It felt so good to peel that thing off me and get my skin back. I plugged the sensor into it's charger and waited for the light to turn from blinking amber to green. And waited. And waited. Finally I decided to plug it into the USB port on my computer. That seemed to do the trick. Then I had the fun of figuring out how to put on a new patch. The med aide put it on me at the doctor's office. She showed me the process but my audio memory, well, my memory in general, is not great. I have since referred to the instruction booklet multiple times to tell me what to do. 

The smartphone needs recharging every night. It wakes up randomly and beeps. The day after I had the device, an alert on the phone said it wasn't sending data and to call the 800 number. I called the 800 number and got a nice person who spoke excellent English and who told me how to fix it. Since then, the phone seems to be happy. I wear it strapped around my waist in a stretchy piece of cloth. Apparently the battery in the sensor will last longer if the phone is in close proximity. I feel like I'm carrying two electronic infants, one strapped to my waist and the other glued to my chest. Like Giga Pets, they need a lot of attention. 

Sorry if I'm boring you. It's easier to tell you about the details of the barnacle clinging to my chest than it is to describe the thoughts going through my head at the news that my heart doesn't work right anymore. This all happened very quickly. I'm still in shock and denial.

I admit, it did occur to me that I might have brought this on myself by all the times I moaned, "My heart is broken" over the past two years. What do they say, be careful what you wish for? No, that's not the adage I want. What you resist, persists? Um, no, that's not right. Something about if you say something, it will happen? I don't know. The assumption is that our minds have control over our bodies. That if we got cancer, we must have wanted to for some unknown reason. Some sort of cosmic lesson. 

Besides being colossally unhelpful and cruel, it is also not true that if we say something, it will happen. How many times over the years did I state an intention to lose a few pounds, or get more exercise, or turn my art into a business? Right. As if my mind had such power. I'd be thin, wealthy, and living in the Caribbean if simply visualizing my success means it is going to happen. It's the "do what you love and the money will follow" idea, which is the worst advice for artists ever given. 

Do I take the blame for my broken heart? You might say, well, Carol, weren't you raised on Wonder bread, Froot Loops, Crisco, hamburger patties, and canned green beans? As an adult, didn't you drink, didn't you smoke cigarettes, eat red meat and lots of saturated fat and processed foods? Yes to the first one, no to the second. I was vegetarian for a long time. I have never smoked cigarettes. I haven't had a drink in years. My worst vice is coffee. Black, no sugar.

Compared to many Americans, I eat a spartan diet. Maybe it was too spartan, who knows. I don't blame my environment so much as I blame my genes. The cardiologist asked me if I had kids. When I said no, he said that's good, because they would have the risk of the same problem. This is largely genetic. Maybe a defect that went unnoticed until now, I don't know. My father had a heart problem, not enough to keep him out of the military but it caught up to him eventually. By the time he was willing to do something about it, it was too late. He was too weak for heart surgery. He fell off the front porch and broke his hip, but it was his heart that killed him. 

Today I feel pretty good, given I've been on a starvation diet for three days in preparation for a colonoscopy tomorrow. I assume the technicians will read my chart and take all necessary precautions. It would be pretty embarrassing to have a heart attack while I've got a camera up my butt. 


January 09, 2022

Who am I and what just happened?

Poor old Google can't keep up. I'm opening and closing several web accounts using multiple log-on identities on two different computers and Google keeps trying to alert me, Oh no, there could be a security breach! As long as I remember my passwords, I'm okay. Worst case, I get a text with a magic number. If I ever lose this phone or get a new one, I'm toast. I've lost one yahoo! identity because of a lost phone number. If it happens again, I'll just have to reinvent myself. 

Reinvention is not new to me. For example, I used to be a person who had a cat. Then the cat died (two years ago today) and I reinvented myself as a person who used to have a cat. Up until a year ago, I was someone with a mother. Now I'm not. I used to be a resident of Portland, and now I'm a resident of Tucson. Personal reinvention is the natural progression of life. Or is it reincarnation? I don't know. 

Speaking of starting over, I asked the universe if it wanted me to live in my car. You know how you sometimes ask the Universe stuff? Or is it just me? Universe, I said, if you want me to live in my car, okay, I'll give it a shot, but if you don't, please send money. 

You can't expect the Universe to do all the work. Sometimes the Universe needs help. Right after Christmas, I got on the Web and looked for a job. I found a job listing for an academic editor, updated my CV, figured out how to upload my documents, and clicked Apply. Whoosh! With that click, I had notified the Universe of my willingness to earn.

The Monday after New Year's, I got an email. The next day, I had a phone screen. The day after that, I had a Zoom interview. Thursday I got a job offer. How about that? I had one day to bask in my job-hunting glory. (They want me! I'm not too old!) The basking was short-lived. On Saturday, parts of my brain stopped working. 

It happened while I was on a Zoom meeting. Maybe I was super stressed out, I don't recall. I had a ten- minute talk, and luckily, I had notes. I think what I said made sense, but I can't be sure. I don't remember much. By the time the talk was over, I was experiencing a phenomenon known as transient global amnesia. Now that I'm more or less on intimate terms with the condition, I think I can snuggle up to it and call it TGA. 

TGA is a sudden, profound, temporary inability to form short-term memories. I know! Who knew such a thing was even possible!? Not me. I thought I'd had a stroke. After the Zoom meeting ended, I ran to the mirror and started making faces at myself and flailing my arms around in the air over my head. Was my mouth drooping? Had I started drooling? Were my arms matching each other in their range of motion? No to the first two questions, yes to the third. Did I know my name? Yes. Could I type? Let's find out.

I consulted Dr. Google and quickly discovered my malady had a name. Transient global amnesia. It sounds frightening, and it was. Transient sounded reassuring, but global? Amnesia? Oh no, who am I? What just happened?

TGA is a strange phenomenon. My mind had wandered out into the short branches and could not find its way back home. Thoughts ran through my brain like water. Once they passed through my mental processor, they were gone as if they had never existed. File not found, file deleted, file corrupt. I was literally trapped in each moment, like a goldfish in a water bubble. I could not reconjure the thoughts I'd just had moments before. I could have a conversation, but I could not hold the thread of the conversation in my mind. Every sentence was new, disconnected from anything that just passed. I attended another two meetings, limping from one sentence to the next, before I could eat lunch and assess the damage. Formats and agendas saved me. I could read, I could follow directions. I just couldn't remember what had just happened. 

The word that kept me calm was temporary. Sure enough, in a few hours, the fog lifted. The websites I consulted indicated I might not remember much about what happened during the episode. I know what I had done because I had notes and my calendar, but I can't recall specifics of what I said or what others said. A few hazy images linger now, but mostly yesterday afternoon is a black hole. 

I have profound empathy for what my demented mother most likely suffered in her final years. It was utterly confounding and disabling to be unable to access my short-term memories. It's ironic that the goal of meditators is to detach from distractions and stay in the present moment. Someone should figure out how to put TGAs in a bottle, Red Bull for Buddhists. Guaranteed to keep you in the here and now.

I don't think I am cut out for meditation. Before this episode, I was neutral on the idea of the here and now. Now I am sure, being stuck in the here and now is not nirvana. It's okay to visit, but don't lose your way back to where you were. 

Which leads me back around to this new editing job. It's a part-time remote gig editing dissertation chapters for half a dozen students a few weeks of each ten-week term. I need a functional brain to do the job. I'd like to believe that the Universe has come through, delivering an income source when asked, so I don't have to end up living in my car, but we know the Universe can be a trickster. 

This week the new college is checking out my former employer, a crummy career college that laid off a bunch of teachers in 2013, me included, and finally gasped its last in 2020, thanks to COVID. The defunct career college (of which I have blogged a great deal! See just about any post prior to 2013) is following good camping practices by packing it in, packing it out, and leaving no trace. I had to send copies of my W2s to the background check company to prove I actually worked there. 

The new school might decide I'm a liar. I doubt it, though. They need people like me, people who are intrinsically motivated by something other than money. It's a for-profit institution. If you have read my blog over the years, you know how I feel about for-profit higher education. I know they underpay employees to keep tuition low. I know the hours will be ridiculous, and I will have no say in anything. I know this from experience. If they decide to hire me, I will accept the job with my eyes open. Editing student papers will help me stay current in my quest to be of service to nontraditional graduate students who need support and guidance. It's my thing.  

As long as my brain holds out, I will keep trying to live usefully and walk humbly.