I had another MRI, this one on my head, and an MRA for good measure, because why not, it was twofer day at the magnetic resonating center or whatever it's called. I put on blue scrubs and pretended like I was a healthcare worker, sitting in the waiting room with my blankey, nodding reassuringly to the other patients waiting their turn in the interrogation chamber. After an MRI, a CAT scan, an echocardiogram, and umpteen ultrasounds, not to mention an endoscopy and a colonscopy, I'm an old hand at this internal organ interrogation stuff. I ho-hummed through the insertion of the IV into my vein (yes, there is a valve there, yes, go ahead, keep digging, I'm used to it). Inside the room beyond the glass command cubicle, I laid down on the bed (which resembled the conveyor belt that trundles coffins into the oven). I smiled with gratitude at the tech who put a block of foam under my knees. I willingly put my head into the tray, like the prisoner going to the guillotine who still has faith that God will intervene up until the moment the blade comes down and liberates their brain, and gave the tech a thumbs up when the headphones started playing oldies.
I admit I got a tiny bit anxious when the tech put the cage over my face, six inches from my nose, but I shut my eyes and let myself drift away with Smokey Robinson. Thirty minutes in, the tech stopped the giant machine to inject me with the gunk. I had some trepidation, remembering an uncomfortable moment in the previous MRI, but this time around I didn't feel a thing. I had a bulb to squeeze in case I panicked, but I didn't need it. My veins (or arteries?) apparently said oh boy, yummy stuff, dye contrast! Let the magnetizing recommence!
Forty-five minutes later, feeling like I'd been pummeled by an incompetent masseuse who was being yelled at by a gruff drill sergeant, the test was over, and I walked out into the hot morning sunshine.
Two days later, I got the report.
I am not crazy. It is not my imagination. It's not just a smoking gun. I see the gun, I see the bullet. My brain really is broken. The radiology report indicates I have the vascular problem that can cause vestibular paroxysmia. Not everyone who has this particular vascular condition gets my type of recurring vertigo and tinnitus, but the patients who have my type of recurring vertigo and tinnitus almost always have some kind of artery or blood vessel encroaching on the eighth cranial nerve. The good news is that there is no evidence of a tumor, lesion, or cyst that could be causing this paroxymia.
In other words, I'm a textbook case. Well, wait. I doubt if this condition is in textbooks yet. If it were, the ENTs I have met so far might not have been skeptical when I told them about it. I know doctors sleep through med school, who can blame them, but you'd think somewhere along the line when they learned about vestibular migraines they might have at least heard of vestibular paroxysmia.
For a brief moment, I felt smug satisfaction that I had diagnosed my malady correctly. Yay, me, so competent with Dr. Google! That wore off fast. Now I'm impatient and frustrated to get my hands on the remedy for the malady. I've had enough of being a doormat for some stupid artery that decided to get a little too cozy with a very sensitive nerve. I mean, come on, brain.
Well, I know you can't reason with a brain, anymore than you can petition the Universe with prayer. Arteries do what they do. Idiots, wackjobs, dictators, and politicians are similar. We can't cure it and we can't control it. If biofeedback, yoga, and aroma therapy would work, you know I would have been all over it. The futility of trying to reason with any body part, let alone an artery I cannot see or touch, is like shouting into the void. I feel the effects of its bad behavior, though, and now—ha, ha!—its inappropriate nerve cuddling has been caught on film. The red villain has been caught red-handed. Like to see you wiggle out of this one, you stupid artery. If I could get in there and strangle you, I would, although it would probably give me a stroke, but just for a moment, to express my extreme displeasure and frustration at the three years of torture, every minute of every hour of every day for three years, to listen to you horndog making out constantly with my vestibular nerve . . . surely I could be forgiven for my desire for revenge.
I am not crazy. It is not my imagination. It's not just a smoking gun. I see the gun, I see the bullet. My brain really is broken. The radiology report indicates I have the vascular problem that can cause vestibular paroxysmia. Not everyone who has this particular vascular condition gets my type of recurring vertigo and tinnitus, but the patients who have my type of recurring vertigo and tinnitus almost always have some kind of artery or blood vessel encroaching on the eighth cranial nerve. The good news is that there is no evidence of a tumor, lesion, or cyst that could be causing this paroxymia.
In other words, I'm a textbook case. Well, wait. I doubt if this condition is in textbooks yet. If it were, the ENTs I have met so far might not have been skeptical when I told them about it. I know doctors sleep through med school, who can blame them, but you'd think somewhere along the line when they learned about vestibular migraines they might have at least heard of vestibular paroxysmia.
For a brief moment, I felt smug satisfaction that I had diagnosed my malady correctly. Yay, me, so competent with Dr. Google! That wore off fast. Now I'm impatient and frustrated to get my hands on the remedy for the malady. I've had enough of being a doormat for some stupid artery that decided to get a little too cozy with a very sensitive nerve. I mean, come on, brain.
Well, I know you can't reason with a brain, anymore than you can petition the Universe with prayer. Arteries do what they do. Idiots, wackjobs, dictators, and politicians are similar. We can't cure it and we can't control it. If biofeedback, yoga, and aroma therapy would work, you know I would have been all over it. The futility of trying to reason with any body part, let alone an artery I cannot see or touch, is like shouting into the void. I feel the effects of its bad behavior, though, and now—ha, ha!—its inappropriate nerve cuddling has been caught on film. The red villain has been caught red-handed. Like to see you wiggle out of this one, you stupid artery. If I could get in there and strangle you, I would, although it would probably give me a stroke, but just for a moment, to express my extreme displeasure and frustration at the three years of torture, every minute of every hour of every day for three years, to listen to you horndog making out constantly with my vestibular nerve . . . surely I could be forgiven for my desire for revenge.
I hope by next week's blog I will have received a call from the (highly chagrined) ENT (one can hope) telling me, yes, you were right, Ms. Patient We Didn't Believe. We see it right there, and even though we would still like you to see the neurologist (whose earliest appointment is the first week of February 2024), we are going to prescribe you one of those antiseizure medications as your reward for being such a patient patient instead of the raving puddle of whining anxiety we usually see.
I have hope. But I know what happens when you wish for something. Sometimes you get it, and it ends up being worse than the disease. So (if you care), watch this space.
