I need to be sedated

Tis the season during which the residents of the mobile home park dress up in costumes and shuffle over to the clubhouse to drink strawberry lemonade witches brew and eat candy corn and tootsie rolls. Or whatever they were doing in the clubhouse last night. As I limped around the park in the gloaming, I passed a geriatric couple wearing orange T-shirts decorated with pumpkin faces. I took my earplugs out of my ears and said, "Nice pumpkins." I waited for a response but they looked at me with blank expressions, which indicated to me either they hadn't seen me walking around the park at dusk almost every night for the past year and were wondering if they should call security or they had left their hearing aids at home in anticipation of loud music at the monster mash and couldn't hear a word I said.

I passed another person just getting out of a little blue car. I could just see the top of their head, which sported a colorful jester hat, complete with bells. I didn't see the rest of their costume before I had moved on by. Something glittery, dangly, noisy, and backless, probably. One can hope.

Under clear skies and a bright moon, the old folks beelined to the clubhouse, via foot, walker, golf cart, and SUV. I briefly contemplated poking my head in the door for a looksee. Having once been in the costume industry, I have a great love of self-expression through apparel, as long as it is everyone else looking stupid, not me. Been there, done that, a lot, to the everlasting chagrin of my father. Last night, however, I didn't stick around to see what was going down at the Halloween hoedown. My party animal days are long past.

In fact, I am morphing into the opposite of a party animal. My sister gave me a word to describe what I am, which I will share with you and write more about in a future blogpost, if I remember. I am an apanthropist. Go ahead, look it up. I'll wait.

I complain a lot but I can adapt to almost anything, it seems. I was looking at some photos of the room I rent in this mobile home, which I fondly refer to as the Barbie Dreamhouse Without the Dream. I'd forgotten that just last year, I lived a life of abundance. I had two desks and two computers, and a fabulous chair on wheels, which I could drag between the two desks, as if I were two different people. An artist and a writer. What a creative life I had! And how quickly I have adapted to a life with less of everything, in anticipation of living a life with almost nothing.

I felt a twinge of sadness, which I do frequently these days, well, all the time for my entire life, if I'm being honest. I'm just a sad chronically malcontented whiner with a strangely optimistic streak of hope that I will find my creativity no matter what circumstances fall on my head. And so far I think I have. I keep writing, blogging, drawing, mentoring, hoping I'll stumble across the conditions in which I can thrive. Meanwhile, I adapt.

For instance, I'm adapting to the new revelation that my PCP has suddenly retired (or died) and now I have a new PCP, who like most healthcare providers in this system, is booked out until February of 2024. In a new round of righteous indignation, my well-meaning friends and family are berating me to "be my own advocate" and demand what I need. Ha. As if I knew what that was. I am showing up with persistence, patience, and pluck, but I wish they would say something less like "You need to push harder at the healthcare system" and more along the lines of "Gosh, Carol, that sounds stressful and frustrating."

Maybe I am too much of a fatalist. Maybe besides being an optimistic apanthropist, I am also a bit of a nihilist. What is the point of pushing? As if life were so precious. There is no meaning or purpose to existence. The meaning I attach to events is arbitrary and pointless. As if I had any control over reality. Is it a basic philosophical difference? I like living okay, usually, but sometimes isn't it okay to let the Universe have a say in how events unfold? People who tell me I need to fight harder are the ones who are most afraid of losing what they have. Maybe they need to do a little Swedish death cleaning to gain some perspective.

I think I just need to be sedated until conditions are optimal for success. Like, just let me sleep. Put me in a crystal cave and fill the door with a boulder on a timer and post a sign outside: open this tomb when conditions for this creative hothouse heirloom tomato of a person are likely to foster happiness. I haven't figured out all my specifications, yet, but for sure, when I wake up from my long slumber, I want all guns to have been melted down and beaten into ploughshares and windmills.

Living life on the floor

I have one small victory to report. With a little help from my friend, I managed to replace the support struts on my minivan's liftgate without braining either one of us. It's always great when DIY car repairs don't kill or maim anyone. There's enough killing and maiming going on in the world without my car adding to the carnage. In addition to the satisfaction of accomplishing one thing on my endless list of tasks, I saved quite a bit of money. I would have saved even more money if I hadn't had to go to the dealer for a replacement bolt that sheared off when I was about to embark upon my camping trip to Flagstaff. Remember that? That was a fun morning. Not. 

But now the liftgate is working, which is more than I can say for my right butt muscle. I have a severe hitch in my gitalong. In other words, I can barely walk. The pain is excruciating, radiating from a knot in my gluteus . . . I want to say maximus, but I don't actually know. I've stared at the anatomy drawings and all I see is a mushy red version of Autopia, with roads of muscle overpasses and underpasses and the whole thing looks like the Santa Monica Freeway in rush hour. 

I chalked up the pain to arthritis, and I'm probably diagnosing myself correctly, considering my mother had a hip replacement and my brother somehow managed to dislocate his hip while stretching in his sleep. Ouch. Mom got a metal shank in her shanksmare, and my brother got a new ball and socket. Thus, it wouldn't surprise me if my turn was coming soon, even though I'm just barely sixty-seven. This is not the kind of precociousness I admire. 

Anyway, I got to thinking as I was stumbling around my room with my mother's cane, which she never used, having leaped straight over the cane to a metal wheeled walker, figuratively speaking. This pain does not seem to emanate from the actual hip ball and socket joint. I have been consulting with Dr. Google and it won't surprise you to know I now have multiple diagnoses, ranging from benign to dire. Dr. WebMD was equally creative. What did we do before internet doctors, I ask you! Go to real doctors? Ick.

I refuse to quit going out for my evening constitution around the mobile home park, despite the fact that every step burns and despite the fact that the vestibular spasms put me off balance as the waves sweep through my head every thirty seconds. I know I'm a broken hip waiting to happen, but that doesn't stop me. This evening my walk took on a meditative tone as I placed my feet carefully on the uneven asphalt. I would not have seen a snake or javelina or coyote until I was right on top of them, I was so intent on watching my feet. Besides managing the pain, I was determined to follow the directions of my favorite YouTube physical therapist. Apparently, my gait is partly to blame for hip flareups. 

For instance, he advised me to walk with my toes slightly splayed. In my adolescence, I preferred to appear somewhat pigeon-toed, thinking that made me look more like Twiggy. I'm not pigeon-toed now, although I currently walk like a drunken sailor so there's no telling where my feet could end up. But tonight I really tried to turn out my toes, especially my right foot, while I minced along the road with my shortened stride. I'm not sure, but turning out my toes seemed to ease the pain somewhat. I had my head down, so I couldn't tell if people were watching me through their windows and wondering why I was walking like a duck.

More important than the splayed toes, the PT said I should pay close attention to my glutes. Specifically, I should squeeze them alternately while I'm taking each step. Left, squeeze, right, squeeze, so that the muscles support the inflamed hip. Well, I quickly found out I no longer have anything resembling muscles in my butt. My butt is flat as a board (but not as hard as a board, sadly), so there's nothing there to squeeze. I did manage to coax a little you want me to do wha—? from my left glute, but my right glute was MIA, nowhere to be seen. Just a floppy pile of jello. Now I can truly claim to be half-assed. Ha. 

I made it home and collapsed on my foam rubber bed. My mind wandered into the past, as it is wont to do when I'm trying to figure out a medical mystery, and it occurred to me that I have felt something similar before. Not exactly the same, but similarly immobilizing in the buttocks region. Back then, I was both post-menopausal and vegan, which is not a combination I would recommend, but there I was, trying to maintain muscles on little more than soymilk and tofu. Plus, I was jogging almost daily, trying to tighten up my loose quads. It's no wonder my back and leg gave out. My muscles had atrophied from lack of adequate nutrition. That painful time led me to Dr. Tony, the wacko naturopath, which was another painful time, mainly in a financial sense. He flummoxed me with mumbo-jumbo, but he probably saved my life by telling me I'd better get more protein or else head south with the geese. 

Now I'm going to do that thing that doctors hate so much and diagnose myself. Why not? I did it before with the vestibular issue, and they are starting to get on board, so why not diagnose my butt? Here's what I think. I don't think it's hip arthritis creating this stabbing burning pain. It's either a nerve problem or a muscle problem, brought on by sitting for extended periods of time on a $11.00 IKEA plastic folding chair in front of my laptop, which is sitting on a $17.00 Walmart wooden folding table that is just about two inches too tall for the height of the chair. It could be that lack of protein is playing a role, considering I don't get much these days and I'm not willing to eat animal flesh just yet. However, I think the precipitating trigger was my chair and table setup. The writing life is killing me.

That is why at this moment, I am sitting on the bed with the laptop on my lap, like any sensible sendentary computer user would do. My bed is on the floor, and now my desk is on the floor too. Maybe my hips will loosen up a little and enjoy life if I give them the job of getting up and down off the floor twenty or thirty times a day. Like they have a choice. I can always crawl to the bathroom if I have to. It's not very far. 

The annoying choice between safe and happy

I had a birthday this week. To celebrate, I treated myself to the trifecta. I don't mean I went horse racing. I mean, I sidled on down to my pharmacy and got the COVID-19 booster in my right arm and the flu and RSV shots in my left arm. Then I went home and descended into the misery I so righteously sought and deserved. I can hear what you are saying right now. Just because your friend E got all three and bounced back like a Bobo Doll doesn't mean you can do the same. E is six years your junior! Come on, Carol. Get real!

Clearly, even at this ripe stinky old age, I still have a lot to prove. 

What did I prove? I am a superhero. After a day and night of fairly intense suffering (it's all relative, isn't it?), I emerged stronger, straighter (in a postural sense), and buoyed with optimism. Invincible is how I feel. Confident enough to keep my tube of Preparation H in the same jar as my Crest Cavity Protection. That's pretty darn cocky for someone on the glaucoma watch list.

As is normal for a chronic malcontent, my unearned sense of optimism wore off fast. Now I'm back to my usual gloomy self. The alarm clock in my head relentlessly chimes once or twice per minute of every waking hour. I can't say for sure what happens after I finally fall asleep, but judging by the amount of time I spend awake and staring out the bathroom window at the stars, I'm guessing the alarm rings while I'm sleeping, too. During the day, like for instance, right now while I'm typing, I can tune it out. But when I'm lying on my foam rubber mattress on the floor, the noise in my head is deafening. I wish I were deaf, but I have a feeling this kind of sound is the kind you hear through your eight cranial nerve. Sort of like the way trash truck noises travel through the floor of the trailer at 4:00 a.m. and permeate my bones. Oh, the humanity.

It's so fun to hear other people express righteous anger on my behalf. I have to remind myself, though, that they might possibly be right. I'd rather not consider that possibility. Some of their suggestions are downright annoying. For example, people give me suggestions (advice) on everything from eating to dressing to finding a home to managing my healthcare. Some of it I've heard since I was a kid, so it's easy to tune it out—get a job, wear a bra, grow your hair, learn to type, draw flowers and fairies. Lately, I've been told to apply for senior housing, move closer to family, put my art on t-shirts, be more assertive, sell on BookTok . . . The list goes on and on. I suppose I do the same to them, so I fair's fair.

I usually fall into the trap of trying to defend myself and justify my choices. Later I berate myself for once again falling into the trap of trying to defend myself and justify my choices. It's futile, yet I still slip and fall right in. More like I dive in headfirst. I'm self-trained to defend first and self-berate later. And of course, because I live in constant doubt, I wonder, are they right? Is the problem that my hair is too short? Or I don't eat the flesh of dead creatures who would prefer to still be living? Or that I should just accept where I am, even though I don't like this town, and focus on being safe, forget about being happy? 

I've done so many things wrong in my life, it's easy to nod and say, you're right, I'm sure you are right. Everything would be different if I just put on a bra once in a while. Or stopped picking my teeth with toothpicks. Or yelled at my doctors instead of sucking it up and whining to any friend who will listen. 

In the end, with all the noise in my head, I can't hear my own voice among the voices of all my well-meaning advisors, mentors, and fixers. How much of my predicament is the product of a lifetime of thoughtless choices, and how much is attributable to a structural problem in the U.S. affordable housing market? I read an article today about someone who works in Los Angeles but has to live 100 miles away to find affordable housing. That's a 2- to 3-hour commute! I did not create this housing shortage. Neither did I create the fiasco that is the U.S. healthcare system. I just happen to be caught up in the vortex of ill health, age, poverty, inadequate housing, and a deep desire to rest in silence. 

A good friend's mother is dying. Another friend just found love for the first time in many years. The refrigerator is working. My check engine light went out. My sister's cat finally pooped after days of constipation. Lives are cut short from war, earthquakes, sea-level rise, gun violence, and COVID-19. The world is busy. I want to be busy, too, writing. I don't need much to do that. Maybe I can find my own version of Walden Pond. Is it out there? I won't know unless I go look. One thing I am sure of. It is not here.

Caught red-handed

I whine a lot to my friends about the broken state of my brain. Yes, I am referring to the meatball in my head that I joke is constantly trying to kill me. It's one of those cynical kind of jokes that never gets a laugh, the kind where with your next breath, you throw your hands in the air and say, Universe, just kill me now, ha ha. Then when lightning fails to materialize and you keep on breathing, you say, well, not today, I guess, and keep on living and complaining your brain is trying to kill you. You know what I mean. No? Well. Ahem. Maybe it's just me.

Well, it's not all just me. My brain really is trying to kill me. Or at least, disable me. The evidence is on tape. Film. Whatever gets produced when you get an MRI.

I had another MRI, this one on my head, and an MRA for good measure, because why not, it was twofer day at the magnetic resonating center or whatever it's called. I put on blue scrubs and pretended like I was a healthcare worker, sitting in the waiting room with my blankey, nodding reassuringly to the other patients waiting their turn in the interrogation chamber. After an MRI, a CAT scan, an echocardiogram, and umpteen ultrasounds, not to mention an endoscopy and a colonscopy, I'm an old hand at this internal organ interrogation stuff. I ho-hummed through the insertion of the IV into my vein (yes, there is a valve there, yes, go ahead, keep digging, I'm used to it). Inside the room beyond the glass command cubicle, I laid down on the bed (which resembled the conveyor belt that trundles coffins into the oven). I smiled with gratitude at the tech who put a block of foam under my knees. I willingly put my head into the tray, like the prisoner going to the guillotine who still has faith that God will intervene up until the moment the blade comes down and liberates their brain, and gave the tech a thumbs up when the headphones started playing oldies.

I admit I got a tiny bit anxious when the tech put the cage over my face, six inches from my nose, but I shut my eyes and let myself drift away with Smokey Robinson. Thirty minutes in, the tech stopped the giant machine to inject me with the gunk. I had some trepidation, remembering an uncomfortable moment in the previous MRI, but this time around I didn't feel a thing. I had a bulb to squeeze in case I panicked, but I didn't need it. My veins (or arteries?) apparently said oh boy, yummy stuff, dye contrast! Let the magnetizing recommence! 

Forty-five minutes later, feeling like I'd been pummeled by an incompetent masseuse who was being yelled at by a gruff drill sergeant, the test was over, and I walked out into the hot morning sunshine.

Two days later, I got the report.

I am not crazy. It is not my imagination. It's not just a smoking gun. I see the gun, I see the bullet. My brain really is broken. The radiology report indicates I have the vascular problem that can cause vestibular paroxysmia. Not everyone who has this particular vascular condition gets my type of recurring vertigo and tinnitus, but the patients who have my type of recurring vertigo and tinnitus almost always have some kind of artery or blood vessel encroaching on the eighth cranial nerve. The good news is that there is no evidence of a tumor, lesion, or cyst that could be causing this paroxymia.

In other words, I'm a textbook case. Well, wait. I doubt if this condition is in textbooks yet. If it were, the ENTs I have met so far might not have been skeptical when I told them about it. I know doctors sleep through med school, who can blame them, but you'd think somewhere along the line when they learned about vestibular migraines they might have at least heard of vestibular paroxysmia.

For a brief moment, I felt smug satisfaction that I had diagnosed my malady correctly. Yay, me, so competent with Dr. Google! That wore off fast. Now I'm impatient and frustrated to get my hands on the remedy for the malady. I've had enough of being a doormat for some stupid artery that decided to get a little too cozy with a very sensitive nerve. I mean, come on, brain.

Well, I know you can't reason with a brain, anymore than you can petition the Universe with prayer. Arteries do what they do. Idiots, wackjobs, dictators, and politicians are similar. We can't cure it and we can't control it. If biofeedback, yoga, and aroma therapy would work, you know I would have been all over it. The futility of trying to reason with any body part, let alone an artery I cannot see or touch, is like shouting into the void. I feel the effects of its bad behavior, though, and now—ha, ha!—its inappropriate nerve cuddling has been caught on film. The red villain has been caught red-handed. Like to see you wiggle out of this one, you stupid artery. If I could get in there and strangle you, I would, although it would probably give me a stroke, but just for a moment, to express my extreme displeasure and frustration at the three years of torture, every minute of every hour of every day for three years, to listen to you horndog making out constantly with my vestibular nerve . . . surely I could be forgiven for my desire for revenge. 

I hope by next week's blog I will have received a call from the (highly chagrined) ENT (one can hope) telling me, yes, you were right, Ms. Patient We Didn't Believe. We see it right there, and even though we would still like you to see the neurologist (whose earliest appointment is the first week of February 2024), we are going to prescribe you one of those antiseizure medications as your reward for being such a patient patient instead of the raving puddle of whining anxiety we usually see. 

I have hope. But I know what happens when you wish for something. Sometimes you get it, and it ends up being worse than the disease. So (if you care), watch this space.

The case of the missing poop

The first time it happened, I thought I was mistaken. I chalked it up to my aging brain. The second time it happened, I began to suspect something was up. The third time, even though I didn't see it happen, I saw the evidence—actually the lack of evidence—and that is how I am almost one hundred percent sure that something that lives in this desert backyard is coming out at night to eat the dog poop. 

The little neurotic dog Maddie is uncertain about a lot of things (which is probably why we get along so well—I can relate), and her anxiety makes her timid or aggressive depending on how powerful she is feeling at the moment (is the other dog bigger or smaller?), but one thing she has no doubt about is the moment when it is time to go out and pee in the pea gravel. The optimal time is 5:00 a.m. before it's light out and she can do her business in the dark corner by the fence. Well, if I weren't standing there wrapped in my sheet and holding a portable light as bright as a laser beam, she could hunch in private, but supposedly there are coyotes. I'm not sure I could fight off a coyote if it had a mind to grab this little nutcase while she's pooping, but I would rush in and do my best. 

Anyway, pooping in the dark is not one of Maddie's privileges. 

A few nights this month, she has rousted me off the couch before 5:00 a.m., more like around 3:00 a.m. As her beck-and-call girl (and as a person who would rather avoid cleaning up a mess in the house), I am happy to fumble for my glasses and my sheet and my blazing laser and follow her outside into the dark. Yes, I'm perpetually sleep deprived on dog schedule. However, on the plus side, I saw the super moon a few nights ago. And lots of stars. No coyotes, though. 

Back to the mystery of the missing poop. According to Maddie, something lives in the overgrown bush by the pomegranate tree, and I think that something emerges undercover of darkness to consume the warm pile of tasty poop after we go back to the couch. Ick, you might say, and I would tend to agree with you. (Oh, the couch isn't so bad, really. Oh, wait. What? Oh, we're talking about the poop.) If you are a thirsty hungry tree rat looking for a late night snack, you might go yum. Nobody is around, and here's my chance!

I'm actually okay with a tree rat (or something approximately that size) eating the poop. It's kind of like the reverse of the shoemaker's elves, who came in the night to do the cobbler a favor. In this case, a critter is scooping the poop for me, and that is not something to complain about, especially if I don't have to see it actually happening. Not picturing that. Nope. 

Maddie knows something lives in the bush. I was told it was a rabbit, but I have not seen any rabbits. I've seen myriad lizards. Could it be lizards eating the poop? I am not an expert on this topic. All I know is what I have seen:  Poop is deposited, and poop disappears. 

The first time it happened, I thought I had picked up the poop and forgotten. That can happen to a person who is getting old, not that I have a birthday coming up or anything. The second time it happened, I began to suspect something was up, and that (thank god) it wasn't my forgetful brain. The third time I went out to scoop the poop and found it MIA confirmed my belief that something has been eating the poop. Hm. I was going to say, if I had more time and more curiosity, I would set up an infrared camera to catch the culprit in the act. But, no. Ick. Ew. Yech. 

In any case, I must bequeath the mystery to the homeowner, who is scheduled to return late tonight. I plan to spend one more night on the couch and leave the doghouse early tomorrow. 

I'm ready to move on. Twenty-three days of nonstop dogsitting has given me time to think. I usually think thinking is overrated, but it's hard to stop once I start, so I've been doing a lot of it, in between napping and sweeping, walking and scooping. I'd like to report that my path has become crystal clear, that my massively overeducated intellect has figured everything out, that the planets have aligned to lead me to a new home, but that would not be the case. 

A few things have become clear, though, from all this time to think. First, I need to find a way to live within my means until I can get my vestibular issue resolved. Second, I really don't want to have a dog. And third, I have way too much stuff in my car.